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5 years 2 months ago #45349 by Rockyiss
Seldon I had the same reaction that Sara Anne had , wheww. My brother had what you had , it came back once , he had it taken out again and no other treatment . Ten years later and no sign of it. he was in his forties at the time.
The c word scares most people to death when they hear it but bladder cancer caught at your stage most of the time does fine. Sara Anne is right you should get a second opinion . When they found mine I went to john Hopkins for a second opinion.Thats who takes care of me now. Mine has Come back several times since 2006. ( I think thats when I got it) they usally treat me by just taking it out, and keeping an eye on it.
It will become a new normal for you, we hate for you to have to be on this site ,but hopefully the info will help to ease your mind. rocky

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5 years 2 months ago #45340 by sara.anne
Whew. That is a MUCH better diagnosis!! The caveat that the cancer tends to return, however, is very true of papillary. You should do fine...the location, which makes them somewhat more difficult to treat, however, would still make it worth while to seek a second opinion on the best way to treat these.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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5 years 2 months ago #45336 by sheldon
I am sorry just found and double checked my pathology report it says -Papillary urotheilial carcinoma Grade 1-2 of 3

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5 years 2 months ago #45335 by sara.anne
Yes indeed, one of the problems with bladder cancer is that it returns. That is why continuing checkups are so important. Unfortunately, T2-T3 is not a great diagnosis. Did your uro tell you why he didn't recommend BCG treatments?

Have you had a second opinion? This is not something you fool around with, and a second opinion at a center which has a lot of experience with bladder cancer might be a very good idea. Because of the location of your tumors, your case is a bit complicated.

The best that can happen with a second opinion is that you find out that your current urologist is doing all the right things...state of the art. The next best is that you find that he isn't, but that there are much better options available to you.

We have recently updated our treatment locator site...go to the home page at the top...under HELP find RESEARCHED RESOURCES...click on it and you will find a tab for Treatment Centers.

Alternatively, tell us where you are located and perhaps one of our members will be able to make some recommendations.

Best of luck to you.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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5 years 2 months ago #45333 by sheldon
Hi on February 14 2013 I had a T2-T3 tumor removed from the right side of my bladder which thankfully was only into the epithelia tissue, the doctor gave me a dose of Mitomyacin C and I had complications as a result in which my ureter became inflamed and had stint put in then after 3 weeks doctor took it out and inflamed again to have a nephrostomy tube put in. So after getting a clean check up in July 2013 I started have gross blood in urine and sperm this time and on Sept 9th went to doctor, well he saw another tumor this time surround the left distal ureter, I am 50yrs old scared, yet trying to be strong for my wife and everyone around me. Doctor says he is going to remove as much as possible due to it surrounding the ureter then use a ureterscope to look in ureter towards kidney. what are some other chemo medications that he might use that would not cause me the complications I had with mitomyacin c? has anyone else had similar problems in past and is it common to have it return so soon. I quit smoking several years ago and am leading a more healthy life style....Thanks

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