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Newly diagnosed...question

5 years 7 months ago #45301 by sara.anne
Alan is right....he is in a great place for treatment. With low grade bladder cancer which has not spread into the muscle, very often a "watch and wait" approach is considered best. BCG treatment, which is usually given for high grade, has not been shown to be as effective in low grade tumors.

It IS important to keep up with the cystoscopies, usually every three months for several years. The major problem with this type of bladder cancer is that it comes back. That is why you want to be sure that the urologist is keeping an eye on it.

Wishing you both the best of luck. Your partner is lucky to have you for support!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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5 years 7 months ago - 5 years 7 months ago #45300 by Alan
All normal protocol for non invasive and low grade. The second TURB is usually done to be sure margins and the path report were done correctly and agree-which is pretty standard. Also, the Cleveland Clinic has a great reputation on bladder cancer.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 years 7 months ago #45299 by Ouborders
My partner (35 yo male) was diagnosed in June with a Non-invasive low grade papillary urothelial carcinoma. It was 2.3 x 1.4 x .1 cm and removed following a TUR. He has a follow up scope on October 1. He has not had BCG or anything other than the removal. He was a smoker up until the day before he was diagnosed, and all of this came about because of blood in the urine. We live in Cleveland, so he's going to the Cleveland Clinic.

Does this seem Ike the normal treatment at this point in time?

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