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Any advice comparing Neo-bladder to Ostomy?

6 years 5 months ago #45117 by GKLINE
I am so sorry that you had to join our club.

I am a neo bladder man. I know it isn't for everybody, but it was for me. Yes, there are challenges with every choice and the neo is not for everyone.
I have a few imperfections.... nite leakage.... mucus always. and sometimes I need to strain to finish draining the neo.

But, all in all, I am a happy camper with my plumbing.

The skill of my surgeon was the driving factor in your choice. The neo surgery is Loooonng. Mine was 10 hours. So the Dr. may have other health factors to consider. But I am a 5 year survivor and live a normal life. Although my wife says I am living an insane life.

I wish you the best of luck


Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
New Man! [/size]

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6 years 5 months ago #45112 by dukel
Hi KC, I had the neo-bladder surgery about 4 years ago. It is not an easy surgery. For me the first month was hell. Mostly just discomfort and pain from surgery. After that it got better quit fast. Now I shudder
to think I may have chosen a bag! I don't leak doing the day. Sometimes a little at night. I have sex the same as before with no aids. I do have the mucus issue, but that's really no problem. You do need to understand that all of the things I talked about depends on how good the doctor is. I used a locale Dr. and he done a great job!!
You may go to the best hospital and get a poor result. There are no guaranties. I can only tell you how my neo-bladder surgery went. In the end you have to make your own decision. I know it's not easy, it was hard for me too. You can also go and look at my posts starting with surgery and follow it through recovery or posts of other neo- surgery members. I'm wishing you all the luck in the world!

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6 years 6 months ago #45095 by Alan
Here is a great summary from the Ceveland Clinic on the 3 diversions:

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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6 years 6 months ago #45088 by sara.anne
This depends on a lot of factors, and I hope that many of our members who have had a cystectomy will chime in. You didn't mention whether you are male or female? Neobladders have not proved to be nearly as successful in females, and many women find an "Indiana Pouch" a good alternative.

Sara Anne
(who hasn't needed one)

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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6 years 6 months ago #45087 by kcparsons
I've recently been diagnosed with type 2 bladder cancer. After 4 months of chemo-therapy I'll have surgery. I've spoken to two people that had the neo bladder surgery, 5 years ago for one, 1.5 years for the other. They said that they would do it again, but it seems like an imperfect system with a lot of flaws, and is very high maintenance. I'd like to have some other opinions for comparison.

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