Could Sure Use Some Friends with Funny Bones (@_@)

Merde.

Lost my almost completed post. I will see it with the lost socks in heaven.

Anyhow, time to vent my spleen.

My last follow-up at Loma Linda, having revealed yet another sea fan and some buttons, was on May 21. NHH Ko was his usual sparkling self. I now have a pre-op appt next Mon (6/3), and aTURB / IC the following Mon (6/10).

When Ko's nurse asked me if I was having much pain, I allowed as to having tiny little Nazi storm troopers marching across my left lower back and bladder area, whenever I get up from a chair or climb stairs. Unhappy face. I asked for pain meds and was told that Ko's nurse would handle it.

So we wait, and we wait, and last Monday, I scheduled a pre-op for this Mon, and surgery the following Mon. Again asked for pain relief. Again transferred to nursey and had to leave a message.

And we're waiting...and waiting...still waiting...so yesterday I call nursey and find out my message fell through the crack, Ko wasn't in the office, and they would call him and call me back.

You can guess....I got through the night, and called 1st thing this morning. They said they would take care if it and call me right back......... ........... ............ :/( .

They called back at 1:00and told me that Ko said that I should just take Tylenol until the surgery.

WTF??! I have recurrent and increased bladder cancer, He is planning surgery in 10 days, and he won't allow me pain meds until then? Tylenol, really? I might as well take a Pez.

So, I am going to USC to see Dr. Gill next Tuesday, after the Mon LLU pre-op and hopefully he will be a human bean. I am so tempted to switch docs for this reason alone, but will wait to see if things could possibly be worse at USC. Dave's urologist is also at that LLU office and has had major grief getting apps.

Sorry for the crab fest.

Schmoochies. - Merc

"I'm not going to worry my life away!" - J. Mraz

I just signed up, and i'm already confused. I was first diagnosed Dec 2012. I live near Loma Linda, so that's where I went when the blood clots came on. Icks.

My urologist, a brusque doc I call No ho-ho Ko performed a cystoscopy, and let me see the one lone tumor. it was the sea fan kind (kind of mesmerizing, really), and I asked him where Nemo was. Not one ho. Nothing at all, though the nurse snorted a bit. This would make me a not so newly diagnosed BC person, but i didn't find this site until today. I had a transitional resection Jan 21, stayed overnight, and so was able to go home without a cath. Yay me.

Aside: would it kill them to just call it tumor removal? Really? This is worse than ordering a small coffee at Starbucks.

Back to business. I already put some of this post on GlobalGuy's thread, as I consider him awesome. Meanwhile, back at the ranch, I went in for my first follow-up May 21 and NHH Ko found another sea fan, and this time it brought friends. Some are flat, and appear to be in the same general area (close to the left ureter, yikes!)
Y
I read that some transitional rumors can be flat, so I hope these are that type. I am once again scheduled for a small Starbucks coffee, in and out, in just a few hours. I kind of could tell the cancer had returned, as I had been having backaches and lower pelvic pain just weeks after Jan. The tumors must have started up right after the first surgery. Bastids.

It seems like the pain is worse this second round. Has anyone had this symptom? Is it bad news, or just me getting morbid?

I plan to visit USC Norris center in LA for a 2nd opinion after we get the biopsies from this round. My neurologist and neuropsychologist are there, and they could cross-access all of my info. No telling what good may come of that.

Any ideas on what I could finesse to qualify for an overnight stay? Aside from having a deadly disease and all. And not especially seeing the wisdom in going home with a painful, newly cauterized bladder that may become infected from self-cathing? Words fail me.

Last time i stayed overnight, but only because i had a hysterectomy at the same time. Alas, I am fresh out of uteruses.

My hubs Dave is swell, but bless him, he is a man, only a man. That said, realistically most I should ask hubs to do at home is to leave me in bed with some drugs, saltines,Jello, and a walker. Actually, he could redeem himself by building a motorized rope tow to the toilet. He CAN cook, well grill, but only creatures and corn on the cob.

I absolutely do not want my girls to have to deal with cancer mom, except to kiss me goodnight. They already had to deal with cancer dad three years ago, and I saw the emotional fear they went through. Luckily, he is cancer-free since then.

I plan to visit USC Norris center in LA for a 2nd opinion after we get the biopsies from this round. My neurologist and neuropsychologist are there, and they could cross-access all of my info. No telling what good may come of that.

Any advice? Any recommendations? I really do want to travel, even if is solo, but my driver's license has been suspended due to epilepsy. Bummer. Even so, I will manage if I can get around by planes, taxi, shuttle, bus, or mare's shanks.

Schmoochies - Mercedes


- We will cure this dirty old disease. Well, if you've got the poison, I've got the remedy.
The remedy is the experience...I say the comedy is that it's serious...
I say the tragedy is how you're gonna spend the rest of your nights with the light on.
So shine the light on all of your friends, when it all amounts to nothing in the end.

I won't worry my life away. I say, I say, I won't worry my life away!"

- Jason Mraz, "The Remedy", written for his friend with bone cancer.
His friend is doing just fine these days.



More lyrics: www.lyricsmode.com/lyrics/j/jason_mraz/