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Could Sure Use Some Friends with Funny Bones (@_@)

5 years 5 months ago #44989 by Mspeevish
Hi, y'all

MsPeevish here.i am moving my future threads to the non-invasive category, see you there, I hope.
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5 years 6 months ago #44899 by CatherineH
Hey Mercedes... I as so sorry you are still in so much pain. To add to what Sara Anne said, people here have mentioned that having the stent can cause quite a bit of discomfort also. And I agree, if you are still in pain, definitely let Dr. Gill's office know first thing on Monday... they do want to know these things!

I am also saddened to hear of the loss of your dear friend, Mark. You, Annie, and her girls will be in my thoughts. Take care of yourself and I wish you a pain-free week ahead. Yes... we join you in hating this cancer sh*t!

Best wishes... Catherine
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TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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5 years 6 months ago #44897 by sara.anne
I think that you had a second TURB? It was probably much more thorough than the first, since they knew where the problem areas were and wanted to get deep enough to be able to tell exactly what they were dealing with. Therefore, it is not unexpected that the pain might be worse. If it still troubles you by Monday, I would certainly let Dr. Gill's office know.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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5 years 6 months ago #44896 by Mspeevish
Hi, SaraAnne and Catherine:

I feel I have two good friends than I had a few weeks ago, and I want to thank you for that.

Update--I decided to switch docs to Dr. Gill at USC, especially after spending almost an hour with his PA. Dr. Gill agreed to see me on his day off, as soon as he landed from Amsterdam. They both spent time with me, and assured they treat me like their USC family, and I have to say, that they have.

I have considerable pain this time. Was not expecting that, since the first TURBT (?) didn't slow me down at all. I got Detrol-LA for what they think is spasms, and this helps, but there is still other pain that is not spasms, and it hurts me enough to keep me awake at night. At the hospital, they gave me IV Dilaudid for this, so i am so aware of the difference. Now, at home, I can only get the Detrol-LA and baby Norco (5 mg).

Has anyone else gone through this? The difference between now and the last treatment is the multiple (7) tumors, some near my ureter which required a stent, and the mytocin wash. I should add that I am not a total wimp when it comes to pain, but this is bad. Should I continue to harass Dr. gill's office on Mon, or just hug my heating pad? Something tells me that the energy would be wasted, since the FDA makes it next to impossible for docs to prescribe opium derivatives outside of the hospital environment without ridiculous scrutiny.

And now for something completely different, but even sadder than my pity party. My beloved Annie's husband, Mark, died just before I went into surgery. I only found out on the way home, and my crappy timing is keeping me from her and her girls. She is my best friend in the whole world. She totally understands, but I hate it that she has to be even the smallest bit concerned about me, when she has just lost her husband and her girls have lost their father. I hate this cancer shit.

Wah, wah, wah. Bad day.

Mercedes

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5 years 6 months ago #44869 by sara.anne
Absolutely FABULOUS news about your visit with Dr, Gill. Didn't we tell you that USC/Norris was the place to go!! You KNOW that you are in good hands now, and can relax (somewhat) and know that you will be getting the best treatment available.

So sorry to hear about your friend. It IS hard to have someone leave.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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5 years 6 months ago - 5 years 6 months ago #44868 by Mspeevish
Hey, Y'all!

Good news and sad news.

First, the incredible fantastically awesome good news. Turns out Dr. Gill is the same Dr. Gill we know frkqqii,q,qkom the Cleveland Clinic, but now is at USC Norris. The Gods are speaking for ol' Merc, they are.

I went to the Loma Linda pre-op last week, and asked again for pain meds to no avail, as the grimKo was either in surgery or hiding in the toilet. As soon as I got home, I called Dr. Gill's nurse, Blanca, and whined to her about everything. She told me that he is only working Mons and Weds the next two months or so, and lecturing world-wide in between. After a second, she said she would call me back if she could talk Dr. Gill into seeing me in three days, a Tuesday. So, guess what? She calls him in Amsterdam (!), and he agrees to drive over directly from the airport, to see me. Is this man a God or what?

I go in with the one paltry page of Ko notes from my last cystoscopy (of course, the only record available on such short notice, and 25 cents a page at that). Dr. Gill was politely horrified at the lack of coverage and detail given under my circumstances, and offered to schedule me for surgery June 12. As he left, he turned back and shook my hand and told me that he now considers me to be family at USC, and will be treated like family should be. OK, sniff. Got to me. Awesome human, awesome doc. And best of all, we spent at least 15 minutes just trading war stories and LAUGHING. Take that, you Ko you.

Now I have really sad news. My bestest friend in the whole world is Annie. She is one of the good ones. Her husband Mark, was diagnosed with BC, with mets to the lungs, bones and kidneys. Basically, cancer of the everything, with absolutely no symptoms. He was originally diagnosed in Feb, and probably will not make it much past the next two months. Fortunately, they have lots of family and friend support, and I will visit for a few days as soon as I can. Although Mark isn't eating much these days, he has always found my burnt meatloaf delicious. Being of Welsh descent, my go-to recipes all end up cooked to the grey or black stage, and covered with something lumpy. Mmm-mm-mmm.

Must go now, falling asleep. Wish Mark a peaceful journey home, and I will write again soon.

Schmooches - Merc

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