In process...questions!

11 years 4 months ago #43681 by Mcrout
Replied by Mcrout on topic In process...questions!
Thank you for the kind words. I was wondering if the NMP22 test is a strong predictor of BC. I realize that a cystoscope is the gold standard, so to speak. Are doctors able to tell you something at the time of the procedure? If a tumor is found, can it be removed then or will it be another procedure?
I quit smoking 25 years ago and only smoked 10 years. I am currently 47 years old and a thyroid cancer survivor . I am thankful for my faith, and know God will be with me regardless of the outcome...that said it is still a tough order not to worry and be anxious! Thanks for listening. :)

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11 years 4 months ago - 11 years 4 months ago #43660 by CatherineH
Replied by CatherineH on topic In process...questions!
Hello and welcome to the forum... Anytime a doctor uses the word "cancer" in any context, we can't help but be scared and start to panic. My doctor used the word "atypical" cells when she was testing me for some blood in my urine before any other lab work came back. I think that is what the nurse was trying to convey to you, and that there are other reasons for abnormal cells that are not cancer. But after the conversation with the doc, it would be hard to back up from there and get that out of your head. Believe me, we all understand that feeling.

As far as the internet, it is sometimes our best friend AND our worst enemy when looking at medical information. It does tend to make imaginations run wild. Been there, done that!

If, and this is a BIG if, you were to have a form of bladder cancer, you should know that it is very treatable especially when caught early. But you are NOT there yet, so try to take a deep breath and tell yourself not to panic until you get the cystoscopy done and know what you are, and are not, dealing with as far as your bladder. (I know, soooo much easier said than done.)

Meanwhile, if you have any other questions, please post them. We are a community here as much for moral support as for information... sometimes more so.

Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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11 years 4 months ago #43659 by Mcrout
In process...questions! was created by Mcrout
I am new and currently going through tests. Two years ago, after finding microscopic blood in my urine I had a cystoscope performed which showed nothing, a nmp test was also done and negative. A couple weeks ago, after lower back and increased urination I visited my doctor trying to stay ahead of a kidney infection (had a severe one about two years ago). No infection but sent for a ct scan after visible blood was in urine. Looked at kidneys and nothing was seen but a visit to urologist suggested. No cysto this time, but after leaving dr. called and said cancer cells were found in urine after nmp test. Decided to do another test the next day to rule out a false positive....it also was positive. I am scheduled for cysto in a week.
I am expecting that something will be found. Nurses said to think abnormal cells, that the dr says cancer cells but odds are they are abnormal for another reason. Don't know what to think but am having a lot of anxiety. Any advice or past experiences similar to mine would be appreciated.
Thanks so much! Nurses said to stay off Internet, but I woul rather have facts than be blind!

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