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6 years 1 week ago #43700 by mmc
NMP is what found mine when it came back. They couldn't find it with the scope for quite a while but the NMP was correct. No test is perfect but NMP22 has high accuracy.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 1 week ago #43691 by upnorth
Yes. They try and get you in with in a couple of weeks if they find a tumor.

The faster the better, as we say.

Mark

Age 51
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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6 years 1 week ago #43690 by DougG
The waiting game is NO fun! That is for sure. On the upside, Rudolph is on CBS right now. Turn it on and sing along!!!

Anita

Anita
Forum Moderator
Caregiver
The following user(s) said Thank You: markclod

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6 years 1 week ago #43689 by Mcrout
I will be going on Monday, Dec. 10. I looked on the Cleveland clinic site about the NMP test and it seems to be a strong indicator....67% of those being positive were diagnosed with BC through a cystoscope . Luckily I don't have to worry about the prostate, being female! Thanks for the info.

I did have one performed 2 years ago and it wasn't too bad. I'm just stuck on the fact the NMP test was negative then and I have now had 2 positives. I am so thankful this site is available. IF a tumor is found, is the outpatient surgery scheduled quickly? Sound like the waiting game is part of everything!

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6 years 1 week ago - 6 years 1 week ago #43687 by upnorth
Catherine is correct once again. ;)

The cystoscopy is not all that bad. The only real tough spot is getting past the prostrate. That will kind of make you jump the first time. The doctor usually says something like "And now heres where we turn the corner." or something like that to warn you first.

If you want kind of a humorous look at what goes on during the exam, you can read my blog called "The Visit" on the home page.

The waiting is the worst part. So to pass the time by reading past posts and asking questions.

We arn't experts, but we have been there, and are willing to help in any way we can.

Mark

Age 51
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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6 years 1 week ago #43683 by CatherineH
First, congratulations on being a SURVIVOR! So you've already been through that wringer and I'm sorry you are dealing with another scare.

I do not know much about the NMP22 test since I've never had one. Googling it on a reliable medical website would probably tell you about it's advertised use and accuracy.

When you have your cysto, the doctor examines the inside of your bladder with a tiny camera. (The guys can speak to any discomfort you might expect from the insertion.) He can also put his view on a monitor so you can see what he is seeing at the same time. (I usually have to remind my doc to turn it on, so if he forgets, ask him.)

He will be looking for redness, irritations, any tumors/growths, etc. as you might expect. If a tumor is found, it will be removed during a scheduled outpatient surgical procedure called a TURBT (transurethral resection of bladder tumor) under general anesthesia. Then it takes a few days to a week to get a path report back for a more definitive diagnosis.

Your doctor can take biopsies during a cysto, but it would be pretty uncomfortable and I don't think they generally do that. (Anyone with that experience, please jump in here.)

I've really just hit the high points on this. Feel free to ask additional questions. When is your cysto appt?

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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