Thanks Mike. Last Friday my local urologist went back in to check around, which was the follow up to my second set of BCG treatments. He told me after that things looked good but there was a couple of red areas. So he took the samples and sent them to pathology. He also mentioned something about maintenance. My appointment is May 14th. to discuss the results. I call it guarded optimism. Louie
P.S. I can certainly understand why you would not want to get a neo with a weak sphincter! Lots of pushing and clenching to work a neo and that could have unintended consequences. Also, the pelvic floor muscles are how you get continent with a neo so you would likely be leaking all the time. Who wants that?
Indiana pouch would be my personal choice as the next option. With that one you can catheterize through your navel. People who have ileal conduits seem to be just fine with them but for me I prefer as close to original as possible.
Glad to hear you got in at Sloan. Let us know how it goes.
Mike, Thank-You for the reply. My meeting with Dr. Dalbagni at Sloan Kettering is next Tuesday Jan. 29th. After talking with my local Dr. here in Providence, he said if I am going to have the bladder removed, I will "not" be a candidate for the neo-bladder. The reason being my sphincter/muscle is to weak so I will have to consider the other ways. I saw how succesful others were on this site with the neo so I am definitely disappointed. Any and all input by you guys is greatly appreciated. Thank-You. Louie