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Post 6 BCG treatment Questions.

6 years 5 months ago #44639 by realdeal
Thanks Mike. Last Friday my local urologist went back in to check around, which was the follow up to my second set of BCG treatments. He told me after that things looked good but there was a couple of red areas. So he took the samples and sent them to pathology. He also mentioned something about maintenance. My appointment is May 14th. to discuss the results. I call it guarded optimism. Louie

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6 years 5 months ago #44613 by mmc
I am not but I am not the expert on docs. The thing to know is how many of the exact procedure you plan to get does this doctor do on an annual basis.

If less than 50, you can likely get a better outcome by finding someone who does.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 5 months ago #44608 by realdeal
Hi Mike/everyone. Is anyone familiar with Dr. Adam S. Kibel urologist at Brigham and Women's Hospital Boston,Ma.? Thank-You. Louie

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6 years 8 months ago #43933 by mmc
P.S. I can certainly understand why you would not want to get a neo with a weak sphincter! Lots of pushing and clenching to work a neo and that could have unintended consequences. Also, the pelvic floor muscles are how you get continent with a neo so you would likely be leaking all the time. Who wants that?

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 8 months ago #43930 by mmc
Indiana pouch would be my personal choice as the next option. With that one you can catheterize through your navel. People who have ileal conduits seem to be just fine with them but for me I prefer as close to original as possible.

Glad to hear you got in at Sloan. Let us know how it goes.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 8 months ago #43929 by realdeal
Mike, Thank-You for the reply. My meeting with Dr. Dalbagni at Sloan Kettering is next Tuesday Jan. 29th. After talking with my local Dr. here in Providence, he said if I am going to have the bladder removed, I will "not" be a candidate for the neo-bladder. The reason being my sphincter/muscle is to weak so I will have to consider the other ways. I saw how succesful others were on this site with the neo so I am definitely disappointed. Any and all input by you guys is greatly appreciated. Thank-You. Louie

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