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Post 6 BCG treatment Questions.

6 years 9 months ago - 6 years 9 months ago #43840 by mmc
Louie,

I'd suggest you go to Sloan. Any recurrences of high grade pretty much tells you the direction this is going. Let the docs at Sloan make the recommendation on removal or not but the question YOU have to decide is how aggressive do you want to be in treating this in light of the ramifications of the course of action. For me it was a no-brainer but we all have to decide that for ourselves.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 9 months ago #43839 by realdeal
Hi guys. Thank you for the great responses. Well yesterday 1/5/13 we went back in to do the biopsies and after the doctor came in to see me and showed me four pictures of cancer that is still there. I immediately asked him if the aggressive one was still there and he said no BUT lets see what the biopsies reveal. Could he been trying to make not worry or was he being totally factual? So now another wait to Monday January 14th. to discuss the results. I am wondering if I should be paying another visit to New York, Dr. Balgagni,Sloan Kettering, who Sara.Ann said is an excellent doctor. When I visited him 2 or 3 months ago, he said, if I remember correctly, do the BCG treatments and if they don't work, come to New York to have the bladder taken out. I do have this week out of work to finish up my vacation time or loose it by the end of the week. Not scheduled to be back until the day of my appointment. I have read where a number of people here had wished they did the neobladder from the beginning because they were not succesful with the BCG treatments. So it is confusing as to what to do know? Sara.Ann, moderators, etc. what do you guys think? Thank-You. Louie

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6 years 10 months ago #43731 by upnorth
Hey! Its all ways good to hear an "All Clear"! :cheer:

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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6 years 10 months ago #43724 by mmc
Louie,

First, your English is pretty darn good! Better than some native speakers. Now your accent may be a whole different story but your posts read well and you have no accent at all when I read your posts. :)

"Probably not too big a deal"????? OF COURSE it is a big deal!!!! Every test that comes back all clear is cause for celebration!

CONGRATULATIONS!!!! :woohoo: :side: :silly: :laugh:

Keep up your BCG and hopefully every test from now on will come back "ALL CLEAR"!


Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 10 months ago #43718 by realdeal
Hi Guys. So when I went to the doctor this past Monday, Dec. 3rd., he said good news was the urine shows no sign of cancer. Probably not to big of a deal, but I will take it. He wants to go back in to check things out and possibly take some biopsies. Sorry for my not so great English. Always was much better with math. Anyway, I am scheduled for January 2nd. He said the wait is for the inflamation to subside. Also, thank-you very much to those who have responded. Louie

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6 years 10 months ago #43644 by realdeal
Hi Guys. Thank-You for the responses. Sara.Ann, It will be 12 days from my last(6th.) treatment this Mondays appointment. If he schedules the going back in 2 weeks later, that will be a total of 26 days after the last treatment. Everyone else, what questions should I be asking monday? Thanks a bunch. Louie

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