Forum

× Welcome click the New Topic button to post

Post 6 BCG treatment Questions.

5 years 2 months ago #45339 by sara.anne
There is almost too much information on BCG on this forum!!! Search for it and you will find lots.

First, the most common side effects are fatigue, bladder irritation (having go "go" a lot), some bleeding....The first few treatments are generally pretty easy, and as the body starts to react to the BCG (which is what we WANT to happen) the side effects increase in intensity.

It is possible, and very common, for the uro to reduce the dose of BCG as the treatments go on. There is no real reason for the dose used to start with....that was just the way the drug was packaged when the first treatments with BCG were done and it was shown to be effective! By the end of my maintenance treatments, I was down to 1/3 dose. Even as low as 1/10th has been shown to be effective by Dr. Donald Lamm, one of the experts in BCG (you can Google him...very interesting.)

There are several different dosage schedules or protocols used. The most common is 6 treatments a week apart, and then three treatments a week apart every three months for two years. There are others that are effective; however, maintenance treatments have been shown to increase the efficacy significantly.

Hope this helps...

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: Marlee05

Please Log in or Create an account to join the conversation.

5 years 2 months ago - 5 years 2 months ago #45338 by Marlee05
I just had my last Bcg treatment what side effects if any did anyone have? What is the normal? it was 6 of 6

Please Log in or Create an account to join the conversation.

5 years 3 months ago #45320 by realdeal
Hello DMAN. I am not sure if you are a female or male but as a male I can say it was not as uncomfortable as I thought it would be. You do get somewhat used to them after each one, but just do what you are supposed to and everything will work out. Louie

Please Log in or Create an account to join the conversation.

5 years 3 months ago #45319 by dman
Louie:

I am waiting for my first 6 BCG treatments in another month. Can you tell me what they were like for you?

Diagnosed with TaG3 8/26/13
Awaiting second TURBT 9/11/13

Please Log in or Create an account to join the conversation.

5 years 7 months ago #44727 by realdeal
Well Sara Anne and everyone else, the cancer is still there after the second set of BCG treatments. It is starting to look more like the bladder is coming out? If so, all three doctors seem to lean towards having the bag, as I call it, on the outside. They claim all the other ways have the risks of leaking. My next, appointment is next Wednesday, May 22nd. in Boston with Doctor Kibel, Chief, Division of Urology at Brigham and Women's, which will be my 2nd. with him. My local urologist today did mention the Gemcitabin, Valrubicine and Synrego-Mytomycin C. Most likely I will have a clearer picture of the treatment I will choose. Exactly three years ago this Friday, I had my prostate out and have had incontinence which always gets worse after all these follow up biopsies. Louie

Please Log in or Create an account to join the conversation.

5 years 7 months ago #44666 by sara.anne
I often had "red areas" after BCG, and they turned out to be irritation because of the BCG treatments...sort of a BCG-cystitis. Let's think that is what you have!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add attachements.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 338 Guests 

Statistics

Total Messages: 50868 Total Sections: 1 Today Open: 1 Today Total Answer: 3
Total Subjects: 6518 Total Categories: 11 Yesterday Open: 1 Yesterday Total Answer: 2
Total Users: 7780 Latest User: sjhatch2024
Powered by Kunena Forum