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Hopefully I don\'t belong here...

6 years 11 months ago #43592 by mmc
:laugh: :woohoo: :silly:

Yay!! Congratulations on NOT having bladder cancer.

Spread the word to people you know that blood in the urine is worth a referral to a urologist. In your case it was not bladder cancer but it was clearly worth checking out.

Best of luck to you!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 11 months ago #43591 by Rall100
So, the good news is I don't have bladder Cancer.. the bad news is that I have what the call a Radiation Bladder. THere are things that can be done, so I should have some relief in a month or so. See Dr Walker again on the 12th to look at options. One thing is to go back on Estragen, as he thinks that it what caused the bladder to start being irritated. There is a lot of imflamation in my bladder, and that is what is causing the urge to Pee constantly and the pain I am feeling, as well as the blood in the urine.

So thankful it is not Cancer!!

I will still be stopping the smoking.. this scare was just too much for me!

Thank you all so much for getting me through the weekend! I wish all the best to you!

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6 years 11 months ago #43585 by Nix
Ruthann,
I know what you are saying about feeling "guilty"...........I did too, and I had quit smoking 17 years before I was dx'd with bladder cancer. My son kept saying,
"it is what it is, and you have to move forward and beat this", so I did! :)
There are a lot of people on here that never smoked. I truly believe mine and my brothers bladder cancer came from the enviroment we lived in, a steel town with lots of smoggy air!
Whatever the outcome is, you have found friends on here to help you.
Keep checking in when you need support, after all, we have all been exactly where you are right now.
Good Luck,
Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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6 years 11 months ago #43584 by mmc
Keep checking in every day! Glad you found us. Good luck on quitting smoking! For years on this site I didn't mention anything about it because I felt kind stupid for still smoking after actually getting cancer twice and losing my bladder to it.

Do work on the guilt. It causes physical problems and is not good for the immune system. It is another form of stress on the body.

I felt pain in my kidneys for a couple months after my local urologist said my cancer had spread to the kidneys. Well after my cystectomy, we followed up and there never was cancer in my kidneys. Pain went away. I'm not saying anybody's pain is similar to what I and I never had that kind of experience in the past. The mind is a powerful force! The pain it can make is real! Just as real as pain caused by a physical break in a bone or wound to the muscle.

Again, I hope your situation is not cancer and is something simple to fix. If it is bladder cancer a lot can be done. I'm over four years cancer free now and doing great!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 11 months ago #43583 by CatherineH
Good morning, Ruthann. I like your hummingbird picture. I love birds, too, and right now, out my window at the feeder are about 6 cute little tufted titmouses. (I don't know if that would be titmouses or titmice! lol)

I don't know if this is your first cysto or not tomorrow, but I was really scared and nervous about the first one I had--mostly that it would be painful. As it turned out, they prepped me with numbing gel first which made any discomfort pretty minimal. Now that I've had about a dozen of them, it's just routine as far as the procedure goes. Of course, it's still worry-inducing leading up to check up time thinking about the possibilities but that is true of any kind of medical test.

I hope you can relax today, even if for a little while. Pamper yourself and keep looking at that mug... "It IS all about you!" Take care and I will be thinking about you tomorrow!

Catherine

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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6 years 11 months ago #43582 by Rall100
Thanks you guys.. it is very comforting to have such nice responses when I wake up.

My brother gave me a coffee cup over Turkey day, how prophetic he was.. it says " It's all about me!" That is how I feel right now.. like I am going to be the center of attention for so long, and not good attention.

I hate waking up to pain, today is really bad, couldn't sleep more than 2 hours without having to void, and then you get the whole cramp, clamp down stuff. I am sure it is just my overactive imagination, but it is like I can FEEL the spot on my bladder that is the problem. It feels like a big lump on my left side. I guess this is all a good news/ bad news situation... the bad news is I may loose my bladder, the good news is I wouldn't have to pee all the time and it wouldnt hurt to do it...

Mike, i agree, I have to quit regardless and thankfully it looks like I won't have to do it alone. We don't nor never have smoked in the house, and with winter here, not having to bundle up like an eskimo to go out and slowly kill myself is a good thing, a good time..

I will work on the guilt, it is part of my makeup. I keep telling myself that it might not have been smoking, it might have been my uterin/cervix cancer scares of the past, after all they were all once neighbors.

Well, gotta go again.. pun intended. I hope it is ok if I keep checking in today. I am worried about tomorrow and your support means alot to me.

Ruthann

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