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scared

6 years 4 months ago #42619 by motomike
Scared- of course you are. You wouldn’t be normal if you weren’t. Medical things are a puzzle to most to us until a firm diagnoses can be made. Your doctor will keep searching to pinpoint the problem.

I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010

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6 years 4 months ago #42611 by GKLINE
It is NORMAL to be scared. We all were too.

We all wlcome you here and please follow the advice you have been given by these fine people. They are not doctors... and they don't play Dr on TV, but they are giving you good advice indeed.
A qualified urologist will find the source of blood. And at your age you have a very low chance of it being bladder cancer. But you gotta make sure!

Thank you for coming to this site and I hope we helped you out. And I also hope you do NOT have Bladder cancer.

Thanks for visiting..... I hope your visit is very short and you can get on with your life ..... It's all waiting for you.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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6 years 4 months ago - 6 years 4 months ago #42606 by mmc
Sis,

Just checking in with you to see if you have your appointment with a urologist scheduled yet?

We don't need to know the time, just that you have it scheduled.

Let us know after you see the urologist and he/she takes a peak with the cystoscope.

We are all going to be keeping our fingers crossed that it is not bladder cancer but you NEED to find that out right away. Could be lots of things but this is NOT one of those things where you just wait and see if it goes away by itself.

Once you have the appointment set, relax and know that you are on the path to figuring it out and fixing it and that there is nothing else you need to do or worry about. The time to worry is when you don't act. :) Until then...one step in front of the other.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 4 months ago #42592 by CatherineH
I was about to post the same thing as Sara Anne when I saw she had already done so. Please ask your doctor for a referral to a urologist.

He/she will look inside your bladder by doing a cystocopy which inserts a small camera through the uretha into the bladder. I know that sounds horrifying hearing it for the first time (I know I thought so), but it is generally only mildly uncomfortable and not painful for most women. I can only speak for myself on that, but as part of my followup I have them every six months now, and every three months for the first almost two years after my surgery. My urologist uses numbing gel and mine have never been painful (slightly embarrassing the first time). Don't let that keep you from getting this thoroughly checked and correctly diagnosed.

I hate to generalize, but most non-urologist doctors are not bladder specialists and your age may tend to make them take it less seriously than they should. Please feel welcome to post questions, worries, etc. here whenever you feel the need.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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6 years 4 months ago #42591 by DougG
Sis,

Hope you can see a urologist soon and get this resolved. Scared is something we all understand.

Bless you,
Anita

Anita
Forum Moderator
Caregiver

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6 years 4 months ago #42589 by sara.anne
You certainly do NOT need to apologize for posting on the Forum!! We are all here because we needed help with questions and couldn't seem to get the answers anywhere else.

You should make an appointment with a urologist ASAP. Any time there is unexplained blood in your urine, that is where you need to go.

There are multiple conditions that could cause this, and it is important to figure out what your cause is and get it treated. Bladder cancer is very uncommon in someone of your age, but it does happen. And there are many other causes, all of which will benefit from early diagnosis and treatment. Please see a qualified urologist soon and start getting answers.

Best of luck to you

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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