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Blood clots, onset questions

6 years 8 months ago #41503 by mmc
PS: Never apologize for asking questions. That's why we are here.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 8 months ago #41502 by mmc
If your insurance requires a referral, then I'd suggest calling your PCP back and saying "I need a referral to urologist". If the answer is no, then tell him you want a guarantee, in writing, that he has determined that you do not have bladder cancer and that he will happily foot the bill for any future diagnosis of bladder cancer if it turns out you do have it.

Blood in the urine should NOT be ignored.

Good luck!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 8 months ago #41480 by CatherineH
Hello and welcome... All too often doctors tend to dismiss blood in the urine for women as "female issues" which could very well be the case. BUT... it could also be something in the bladder that needs to be checked, if just for peace of mind.

I went to my GYN as soon as I saw a little pink on the tissue after urination. Since I was post menopausal, she had already told me any blood should be checked out. I had never had any urinary issues, not even a UTI, so I never even considered that it could be bladder related. She kept me there three hours checking different things running back and forth between seeing her other patients.

Finally she said let's do an ultrasound... and there it was! A little walnut looking thing attached to the lining of my bladder. Had it not been for her persistence, it would have been so much worse later down the road.

I'm not trying to scare you, but the bottom line is there are not always other symptoms of BC. We become alarmed at blood in the urine because that is what led many of us to our first trip to a urologist.

My opinion is to insist on a urology appointment. You will feel better knowing if it is or isn't bladder related. And, please know that no question is off limits or too trivial here!

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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6 years 8 months ago #41477 by Markq
Welcome. As you know, blood in your urine can have multiple causes. It may be cancer, but it may not. A visit to a urologist and a scope would be in order to see what's going on. You are smart to be questioning your family doctors assertion that a trip to a urologist is not necessary.

I had blood and clots prior to diagnosis and was diagnosised with a superficial cancer (Ta). Blood in the urine can not by itself accurately predict stage/grade - or even if you have cancer for that matter. It is a symptom and the cause should be investigated further. It may be hard, but try not to let your mind go too crazy. Do push your doctor for a referal to a urologist whether or not your symptoms spontaneously resolve themselves.

47 yo, Ta G3
Diagnosed 11-24-10
BCG induction starting 12/17/10 followed by BCG maintance.

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6 years 8 months ago - 6 years 8 months ago #41476 by clot726
Hello, new here

43 y.o. female, have had clots in urine for a few days, currently on antibiotic. PCP says no need for urologist if symptoms resolve. Have history of chronic polyuria and nocturia. Only other symptom with the current hematuria was one night with fever and chills (possible side effect of antibiotic?) Antibiotic is not reducing the hematuria.

Read about BC and concerned that even if symptoms resolve, it might be sign of it. Heard cystoscopy can detect a lot of things and wondering if i should get one even if hematuria resolves. (Am concerned because this clotting in urine is accompanied by virtually no other symptoms)

Some general questions:

How long does it take for invasive and noninvasive BC to start in the body...is it months? years? It must depend, of course but wondering if BC can develop over many years.

If blood clots in urine are a symptom, is it indicative of an early stage of BC or can this be seen in all stages? If they appear then disappear, would this still warrant a urologist visit, cystoscopy, etc.?

Sorry for all the questions but so new to this and confused. Any input would be greatly appreciated!

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