Hello Warren... Numbers are indeed scary. When I got my "rare" diagnosis, the first thing I did was jump on the internet and searched for anything I could find. There wasn't much info out there but the few I found were showing less than 40% survival rates. Yikes!!! I finally found this site and like you, worrying about the published stats. Someone here told me to throw those numbers out the window because often data also includes stats from doctors who may not be at the top of their field.
So I did...
And, Humpy, love your photo!!!
Best wishes... Catherine
Forum Moderator Team
TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Howdy, no knew news yet, I go in Tuesday for the 2nd TURBT, then it will be a week again for the follow up visit. One good thing is I did look around for places and doctors to do a RC if needed and it turns out OHSU in Portland has picked up a doctor from UC Davis with alot of experience. I still haven't decide on who to send the slides to for a 2nd on the pathology yet....I've been working down on the boat this whole month so it's a little hard to get things done. Any how when I get the news I will post a update. Thanks, Warren
Great pic Jim. Hope you feel as good as you look.
Warren, I know at this point the numbers seem important, believe me they are not. All you can do is fight this fight with everything you have got.
Wishing you the best.