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Survival rates

7 years 6 months ago #40870 by CatherineH
Hello Warren... Numbers are indeed scary. When I got my "rare" diagnosis, the first thing I did was jump on the internet and searched for anything I could find. There wasn't much info out there but the few I found were showing less than 40% survival rates. Yikes!!! I finally found this site and like you, worrying about the published stats. Someone here told me to throw those numbers out the window because often data also includes stats from doctors who may not be at the top of their field.

So I did...

Best wishes,
Catherine

And, Humpy, love your photo!!!

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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7 years 6 months ago #40869 by warrentug
Howdy, no knew news yet, I go in Tuesday for the 2nd TURBT, then it will be a week again for the follow up visit. One good thing is I did look around for places and doctors to do a RC if needed and it turns out OHSU in Portland has picked up a doctor from UC Davis with alot of experience. I still haven't decide on who to send the slides to for a 2nd on the pathology yet....I've been working down on the boat this whole month so it's a little hard to get things done. Any how when I get the news I will post a update. Thanks, Warren

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7 years 6 months ago #40864 by dukel
Great pic Jim. Hope you feel as good as you look.
Warren, I know at this point the numbers seem important, believe me they are not. All you can do is fight this fight with everything you have got.
Wishing you the best.
Duke

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7 years 6 months ago #40861 by Humpy
Thanks Mike, That's me & Billy the Bladder Cancer Bear on summer vacation on Lake Huron.
The new site looks pretty awesome! I'm bummed that I don't have anything to complain about!
lol

Jim

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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7 years 6 months ago #40855 by mmc
Warren: It's been a few weeks? Any update? How are things going with getting into MD Anderson and with your treatment plan?

Humpy: Great picture. Nice that the new site is operational and you are no longer a tiny little negative of an image! :)

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 6 months ago #40854 by Humpy
T1G3, and alive to tell you about. 3 years down, a lifetime to go.
Sorry cancer, you loose.

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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