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Afraid to have cystoscopy done

8 years 2 weeks ago #40602 by upnorth
Robert, just had one done three weeks ago. Not painful but weird feeling is more like it. If you breath out slowly when the scope passes by the prostate it will slip by. Even if it has trouble the URO will tell you what he/she is doing and that your going to feel pressure, :huh: there is no big surprises.

After their done you really want to pee bad. This will last for a few hours but then get better quickly if you drink a lot of water.
Rest up that day and you will be good to go the next day. (Maybe a little sting when you pee for about two days.)

You may see blood clots coming out when you pee, don't freak out, if you had blood in your urine this is normal. The blood that was stuck in your bladder is finally getting out after the scope freed it up.

Its okay to be afraid. But its not okay to pass on this test. You have to do the responsible thing. You must show your friends and family how to be brave in the face of possible cancer. I know of what I speak. My father didn't do it because men are tough. He died two years later from bladder cancer that got out of control. :angry:

I am doing my best to make sure I still have a fighting chance. One scope & one TURP done, removing a cancerous tumor.

One for me, and zero for cancer. :cheer: DO IT PLEASE!!!

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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8 years 2 weeks ago - 8 years 2 weeks ago #40581 by mmc
For most, it is not hard to do. If you insist on the precautions already mentioned, you should be fine. You may even think "what was all the hullabaloo about?"

That is, the numbing jel (and wait 10 minutes for it to work and to coat more area, a mild sedative beforehand so you relax, and some antispasmodic and analgesic for afterward (just in case).

This is not a test to skip.
Sounds a lot worse than it is.


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 2 weeks ago #40577 by lustron591
well, i had an office cystoscopy two weeks ago -- probably my third "awake" scope job -- and it wasn't bad at all; really no worse than some of the BCGs i've had. some docs are pretty good at doing this with little pain. IT'S CREEPY, YES -- but not so bad.

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8 years 2 weeks ago #40574 by warrentug
Howdy, I was one of the few that did have pain with the test, but I guess that is not the norm. But even with that if my doctor wanted to do it tomorrow I would say "O.K." is do-able. I had symptoms for a few years before I had my test and I really wish I had checked it out in the beginning instead of waiting. Some helpful advice from others here include pain pills and also a valium. Best of luck and truly it is worth doing.

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8 years 2 weeks ago #40566 by Alan
I won't say I enjoy this test however, I liken this more as "discomfort" for all of 30 seconds. Am guessing I have had 12+ in tghe past 3.5 years. VERY minor compared to many other types of tests. You'll do just fine and when it's over may even say "no big deal".

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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8 years 2 weeks ago #40565 by GKLINE
Robert, you can do this.
I guess the thought of a tube inserted in "the boy" is kinda disturbing.... but it is no big deal. The only point there is any kind of discomfort is when the tube goes through the prostate. but even that is nothing if you relax and let it happen.

"No big deal" is what you need to keep saying to yourself. And, in the end, my wish is that they find nothing wrong and you are cancer free and you can go on with life as you knew it! But you gotta do it! To end the guessing.

Good Luck

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
New Man! [/size]

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