Forum

× Welcome click the New Topic button to post

what to expect

7 years 11 months ago - 7 years 11 months ago #40183 by CatherineH
Hi again Anne... as far as the TURBT goes, I had mine early in the morning, was home by 1:00 p.m. I had a catheter (first time with that) and took it very easy the rest of the day. The doctor said that if my urine was clear the next morning, they would remove it. I had not seen any blood to speak of, and when I went back the next morning at 10:00 after checking me, it was taken out. By that afternoon, I was out running errands. I know everyone may not have such an easy time of it, but mine went very smoothly.

The TURBT was performed by my local uro. It was after the path report came back that he referred me to Vanderbilt where I had surgery. I did the same as you between my TURBT and first consult with VB... started reading everything I could find out there and finally had to stop because it was too scary letting the imagination run wild.

I didn't find this site until 8 months after my surgery and it was a blessing. I'm glad you are here at this point so we can try to answer your questions based on what we've learned in our own journeys.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

Please Log in or Create an account to join the conversation.

7 years 11 months ago - 7 years 11 months ago #40182 by CatherineH
Hello Anne... Bravo for you for taking your health into your own hands by going to a urologist on your own. It is maddening how little doctors know about the bladder to the point of rarely considering it in their diagnostic thinking, especially for women. My mass (1.6 cm) was discovered at age 55 by my very persistent female gynecologist on my first visit to check on a little blood I had seen on the toilet tissue.

After your biopsy (and/or TURBT), a pathologist will examine it and provide your doctor (and make sure to ask for a copy for yourself) with a path report which will determine what type it is and if invasive/non-invasive. That will determine your treatment options. That generally takes more than a couple of days... maybe up to a week to get the report back.

Unless you are somewhere on par with MD Anderson (for example), before having a "more serious surgery," our collective advice here is to always get a second opinion from a major cancer center who handles a lot of bladder cancer cases, even if you have complete confidence in your local urologist. My local uro sent me to Vanderbilt Medical Center in Nashville because my path report came back in the "rare" category which he was not familiar with as far as treatment went.

It is hard not to jump ahead since so much of the info on the internet jumps right to bladder removal. There are considerations before that depending on the stage/grade of a tumor. Many can be removed with close followup and BCG treatments, so a mass does not immediately send you to the cystectomy option. But, for anyone going down that road, there are many here who have come out the other side of that procedure and can guide them through and provide much comfort and support.

Will be thinking of you on Monday. Best wishes...

Catherine

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

Please Log in or Create an account to join the conversation.

7 years 11 months ago #40181 by annie
Thanks Anita,

I think I will try that chat room thing. I know what you mean about getting ahead of one's self...I think I spent 1 night of fatalistic thinking and then just went totally pro-active. It is such a weird feeling though. All the fears and emotions mixed with resolve of "hey this is just a new road I go down". I am in Austin Tx and I have gotten the work situation taken care of a a couple of weeks but am totally clueless about what I will need on the home front. It really does matter that there are people like you out there to look to!
Anne

T1
N0
M0

Please Log in or Create an account to join the conversation.

7 years 11 months ago - 7 years 11 months ago #40180 by DougG
Annie,

Welcome to our forum. You sound like a "take the bull by the horns" kind of a girl, which I congratulate you for. I am also 54, a caregiver to another age 54! You will not be horizontal for any length of time. You may even go home on Monday...and yes, you should be able to have a BM. Doug's doctor has him take stool softeners (which are over the counter), so you may want to buy some of those. Where are you located? There are people on the forum who will be helpful on helping you identify the closest major medical center that specializes in bladder cancer.

As all here will agree, the waiting is the worst part. Take a deep breath and try not to get ahead of yourself.

On Sunday evenings at 8 PM EST, we have a chat room open. You are welcome to join us there. There are people there with varied experiences with bladder cancer and you can ask any questions you have then. In the meantime, keep posting to the forum!

Anita

Anita
Forum Moderator
Caregiver

Please Log in or Create an account to join the conversation.

7 years 11 months ago #40179 by annie
This has happened so quickly and in spite of preparing myself psychologically, I am unprepared for the physical after effects.
I am going for cystoscopy on 11/21/2011 at 8am for biopsy. The doctor said depending on that he will either perform TURBT right away or if found to be invasive I think I will have a day or two to prepare for more serious surgery.
My question for you folks out there, what is it like to have a catheter/ostomy bag for 5-10 days for a woman? I am trying to get the ducks in a row before Monday but honestly it's hard to figure out what to google next! Am I going to be horizontal for a few days? Will I be able to have a BM?
Any and I mean any advice is so appreciated.
FYI 54 yr old female with 6 months of gross hematuria. Did the GYN visits (3) and all tests, went to PCP 3 times and he was very unconcerned and told me to go to gastroenterologist, which I did. After 6 months of heavier and heavier bleeding I took it upon myself to go to a urologist. Had CT scan and have 1.8 x2.0 cm mass detected. Can anyone offer any advice.

T1
N0
M0

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 1704 Guests 

Statistics

Today Total Opened: 0 Today Total Answered: 3 Latest User: njumandrow652
Yesterday Total Opened: 1 Yesterday Total Answered: 5
Total Posts: 52898 Total Subjects: 6886 Total Users: 8469
Powered by Kunena Forum