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Newly Diagnosed

7 years 2 weeks ago #40281 by rbmc
Hi Alan.......
Hope your journey has had some 'positive' results. I'm still a newbie at this. After 2 surgeries with a doctor, and hospital, I didn't like, it was time for that 2nd opinion. Now I feel more confident that things are being done to go after the cancer. I recently graduated from the 6 week BCG treatment, and have high hopes for a good cysto look again in January.

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7 years 1 month ago #39880 by GKLINE
Allan

This is the reason we are here. Some of us are Good Pre-Procedure Questioners and some are not. I never knew that the Radical Cystectomy involved removing the prostate.... I only found this out when I looked it up on line. I asked the Dr. about it and he said "Oh yes that is part of the procedure."
He was not at all miffed that I questioned him. As a matter of fact, this changed everything about our conversation from that point on. He now gives me the Whole story at every visit.

Good luck with the TURB, and let's hope you get "Clear Margins" the next TURB. (You will have 2 TURB's. One to get a sample and the next to check for margins. Clear margins mean you can start BCG treatments and "hopefully" no furthur surgery.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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7 years 1 month ago #39875 by sara.anne
Allan, there is still (and probably always will be) a bit of "the God Complex" in medicine. Many patients think that the doctor knows everything and is the only one competent to make decisions. They just want to lie back and let the doctor "cure" them. Then there are others of us who want to know EVERYTHING that is going on or could go on. Back in the "good old days" doctors were trained in the "God Complex" way of thinking.

It is a very personal decision...I have known MD's who bought this "Complex" deal themselves...AS PATIENTS! Knew one doctor who, when ill, didn't want to know ANYTHING about it...just let his doc make all the decisions.

Many patients feel insecure, and do not want to question their doctor because he/she might get mad at them...This threatens their sense of security.

That is why we work so hard to inform patients of their rights to second opinions.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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7 years 1 month ago #39839 by CatherineH
Wishing you well tomorrow. I didn't see a doctor the day of my preop, just the lab techs so I didn't get a chance to ask many questions. After your procedure, we can help with understanding the path report when you get it. Hoping for the best outcome after all the facts are in.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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7 years 1 month ago #39824 by clanali
Thank you for all the good info. I am having my pre-op for the TURB tomorrow morning. What are some good questions to ask the doctor? Any info is appreciated

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7 years 1 month ago #39795 by CatherineH
Hello... welcome to this site. It's a lot to take in when you first hear that you may have bladder cancer. After the numbness wears off, your head fills with questions and fear of the unknown. We are here to help with both those things as best we can for you.

A good place to consider for a second opinion is of course Duke. Your uro may have suggestions as well (mine sent me to Vanderbilt) but ultimately you are the decision maker about who you see.

You can read about Duke's Urology department here if you haven't already:

Duke Urology

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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