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TURB Tomorrow ... now what?

8 years 5 months ago #39367 by Patricia
Steve,
A second opinion always a good idea with any cancer. I would take advantage of a second pathological opinion at any rate with Hopkins
http://pathology.jhu.edu/department/services/consults/urologic.cfm
And Doc is right.......3 months is the longest you should go regarding a cystoscopy.
pat

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8 years 5 months ago #39363 by dieseldoc
The wait and see method is normal for that low of grade, but the norm for check ups are every 3 months for 2 years then every 6 months for 2 years then 1 a year. If there is a recurrence you have to start over with every 3 months. You can bet you will have a recurrence with in the first year. If you don't then consider yourself one of the very lucky ones.



good luck!!
gary

T1,NO,MO battling bladder cancer since 2005

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8 years 5 months ago #39361 by sjk
Sara Anne
Certainly not a veteran regarding this, honestly never gave bladder cancer a minutes thought before this August. But I am a pretty analytical person, and try to make my own decisions.
Pathology on the TURB-T came back today, met with my local guy.. About as good as it could get, TaG1.. Seems like the pathology is pretty solid. He wants to just monitor me with cystoscopy every 6 months. His suggestion is to not go with any Mitomycin or BCG since it was staged so low, it was single, and my first. Think I might have Hopkins review the Pathology and see if the staging comes back the same; if it does, this might be a reasonable course of action. Personally, a little aggressive in the treatment department doesn't seem like a bad idea. Of course, if there is a recurrence, and it seems reasonably likely there will be at some point, my perspective will change.
Thing I keep thinking about is, If the extra course of treatment now might reduce the likely hood of a more severe, more aggressive occurrence in the future.
Haven't seen any real definitive data on that.
I appreciate the info I have gotten from you, and will continue to stop by, as well as use this very good source of information that is being built here.
Thank you

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8 years 5 months ago #39324 by sara.anne
Steve, you may be new here, but you sound like a real veteran! It is a real puzzle to me why so many people are not willing to go a distance for a second opinion when their lives are at stake. The very best thing that can happen is that the reviewing physicians say that their local doc is doing all the right things and the patient is in good hands. If not, isn't it better to find out, to get the very best treatment possible?

Your attitude will go a long way to helping you through this.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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8 years 5 months ago #39323 by Joey
Steve I have been a patient with Dr Schoenberg at Hopkins for the past 4 years and have done very well. I was referred to him from my local URO when I was initially dx. He is very highly regarded.

Joey

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8 years 5 months ago #39314 by sjk
Pat

Thanks for the reply, never thought about Vanderbilt. I'm near Roanoke VA, everyone around here goes to UVA for everything. They are a cancer center, but the drive isn't a big deal to me the best outcome is, and it seems so obvious, but amazing how many people don't try to get to the best.. more experience has to be better.

Thanks a lot for the advice

Steve

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