Summer did show up for you. I've been coming to Seattle (well Bellevue) Monday through Thursday or Friday for the past 4 weeks and have two more weeks to go. You had summer two weeks ago for about 4 days. I think Sara Anne is right. Somebody may have stolen it. However, I think I like they 65-70 degree weather better anyway.
Thanks, and I still need to follow up on the dosage and dilusion amount. The other benefit I have is that the wonderful woman in my life now, her step-mother is an ER doctor out of Portland. So she helps us to ask all the right questions. Like going in and storing some swimmers for a later date.
Jason, in my opinion, you definitely want to do the maintenance BCG treatments and I am glad that your uro is recommending them. There are all sorts of statistics that show much better outcomes with the maintenance regimen. You are going through the "agony" now, make the most of the effectiveness!!
That being said, it is no secret that the more BCG you get, the more side effects you will have. As your body gets sensitized to the BCG, it reacts more strongly (and after all, we are taking the BCG to stir up the immune system in the bladder to fight off any more cancer.) If you read the material available on BCG, especially Dr. Lamm's work, you will find that, if side effects become too uncomfortable, the dose of BCG can be reduced significantly and still be effective. By the time I finished my treatments, I was down to 1/3 dose. Some people even go to 1/10 the original dose.
My uro told me that the only reason for the choice of the initial dose is that, when it was first being used, this is the dose that the manufacturer packaged it in! Very scientific!!
You are fortunate to be in Seattle...there are some awesome cancer treatment choices there!..BTW, I am in Portland. Who has stolen our summer?
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Wish I joined before starting treatment, but it seems I now know what to expect. At least for me, the side effects are, fatigue, body aches, headaches, little lightheaded, and of course, bladder discomfort.
Some added info from my post yesterday, I had one urologist do the first diagnosis (ct-scan and cystoscopy) and surgery and a second specialist, a urology oncologist, do the second TURB and second diagnosis. The second doctor is part of the Seattle Cancer Care Alliance, and he is working out of the University of Washington Medical Center (UWMC). So I think I am in good hands with the specialists as well as the people around me including you all.
The one interesting fact is that the specialist is recommending the traditional 6 week treatment and then a follow up 3 week treatment every 3 months for the next 3 years. Has anyone else gone through the additional treatments?
The last bit of info... 38 year old male, no history of cancer in the family, and a non-smoker. So lucky me!!! The 1% of the 1%. The benefit I have is my youth, and the fact that in the 8 months prior to my diagnosis I had lost about 40 lbs and that I eat very healthy. So I think I coincidentatlly started out in the right direction.
Well, thank you again, and I will keep you all up to date on the progress.