That sucks! How utterly frustrating and confusing, not only for you and your son but for the doctors as well...
I was very glad to read that there was an extensive re-scope done going all the way up, plus re-cauterization of the old TUR site. You should be able to rest easier knowing that all visible cancer is gone and no abnormalities were seen. As I said way back after your first post here, there is a chance your son is actually cancer free at this point.
There is a new technique that improves greatly on the accuracy of cystoscopies, it would be wonderful if it were somewhere close to you. There's info about it here and phase III trials are being conducted around the U.S. (it's been approved in Europe for a while),
blcwebcafe.org/hexvix.asp
This could rule out invisible cancer lurking somewhere just under the lining, as CIS often does. The blue-light, fluorescent cysto technique is especially good at uncovering CIS.
I suppose the puzzle still remains the same, what is causing this bleeding, and that the pieces can't fall into place until that's known and dealt with. It couldn't hurt to travel the greatest, bestest place for bladder cancer treatment that you can possibly get to, somewhere with every cutting edge diagnostic and treatment tool available.
Please keep us posted.
Wendy