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Malignant tumor removed

8 years 10 months ago #36839 by Alan
LOL @ myself. :cheer: I looked at the thread today and was amused and shocked reading where I wrote "TURD" instead of "TURB". Glad you caught it! :laugh:

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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8 years 10 months ago #36835 by mmc
Bert,

What some people call 2nd opinion, I call getting to the specialist.

Once bladder cancer is diagnosed, it is wise to then get to a top bladder cancer specialist. They tend to be with the major teaching hospitals and Pat suggested one that is in your general area.

While a general practitioner has a broad understanding of many things, he/she will typically refer you to a specialist once he/she comes to the conclusion that it isn't something common and requires a specialist (such as a urologist) to treat.

Likewise, a urologist has a deeper understanding and experience than the general practitioner in urological related diseases and conditions, once bladder cancer is diagnosed, it is a good idea to have the stage/grade/and treatment options evaluated by the top bladder cancer specialist. Since these specialists focus on bladder cancer, they do more surgery, and have more expertise than most local urologists.

Some folks call that getting a 2nd opinion (when you get to the bladder cancer specialist). If he/she agrees with you local urologist on the diagnosis (stage and grade a critically important) and on the treatment, then it may make sense to have the local urologist do the treatment. This is often the case when BCG treatments are required but not the case if surgery is required.

It is recommended that even the 2nd TURB be done at a top bladder cancer hospital with a bladder cancer specialist. Again, they do more of them so they are better at it.
Bladder cancer is significantly understaged, which is another reason to have the best specialist you can.

This is nothing against your specific urologist or local urologists in general. It is based repeated research into the outcomes of patients treated at the top hospitals with the top bladder cancer experts versus those who are not.

Hope that helps explain things a bit.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 10 months ago #36834 by GKLINE
Alan

Somtime I think we need to rename these procedures. I do like TURD. TURB sounds more like a musical instrament.

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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8 years 10 months ago #36817 by Patricia
How far are you from Chapel Hill N.Carolina? Dr. Raj Pruthi one of the top bladder cancer specialists at the University there
http://www.med.unc.edu/burn/urology/faculty/pruthi
Sometimes you have to travel to get to the right facility and correct diagnosis. Understaging is a real problem.
It sounds to me like you have only had office visits and cystoscopy.....not a TURB in the hospital..true? Or am i misunderstanding?
pat

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8 years 10 months ago - 8 years 10 months ago #36816 by bert1337
y'all keep talking second opionon. i saw the polyp, but have not seen the pathology. doc is good, but to busy. i'm in columbia sc, Dr Lamb at Lexington Urology is my doc. All of a sudden since i'm getting closer to new scope i'm getting scared. thank you all for the posts

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8 years 10 months ago - 8 years 10 months ago #36815 by Alan
Pat is correct in a second TURB and second opinion are the norms. I first wondered why but, "margins' are often missed so a second is vital. The only reason I didn't get a second opinion is because my URO does BLC in about 1/2 of his practice. Plus, he has followed all of what I found out to be "standard" of care.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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