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Malignant tumor removed

5 years 2 months ago #45331 by Flamenco.
Great news, Bert, I have an appointment today with my Uro, and hopefully start some maintenance BCG son.

Diagnosed 7 years ago and still hanging in here!!
Diane

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5 years 2 months ago #45329 by bert1337
WELL Y'ALL COUPLE YEARS LATER AND FINALLY HAD A CLEAN SCOPE. HAD 6 TREATMENTS WITH INTERFERON AND BCG. START MAINTENENCE NEXT MONTH WILL KEEP Y'ALL INFORMED.

iF YOU HAD BGG AND NOT RESPONDED TALK TO YOUR URO ABOUT INTERFERON MIGHT HELP

DIAGNOSED 3 YEARS AGO

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7 years 8 months ago #37127 by mmc
TURB=TransUrethral Resection of the Bladder.
TURBT=TransUrethral Resection of a Bladder Tumor.

They could do a resection (cutting) of the bladder where a tumor is not evident.
I think we kind of use them interchangeably here on this site.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 8 months ago - 7 years 8 months ago #37126 by CatherineH
That's tough news to hear... I'm really sorry to hear that but at least they have identified the problem area now.

I was found to have a 1.6 cm "bladder mass" January 2010 and my uro removed it via a TURBT. He was surprised by my diagnosis when the path came back that it was an invasive adenocarcinoma (rare category) and the pathologist said it was suspicious for invasion into the muscle layer but they could not confirm it with the sample. At that point, it was beyond his area of expertise.

He sent me to Vanderbilt where the uro/surgeon was fortunately able to just remove a segment of the bladder wall (partial cystectomy) at the tumor site just in case there was still tumor cells there. When that path report came back, a very small portion of the tumor had been left behind-- about .5cm, but two margins around that were clear.

So it seems sometimes the TURBT instrument cannot go deep enough to get everything. Like others have said, it's time to seek out an experienced specialist.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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7 years 8 months ago #37125 by Cynthia
http://winshipcancer.emory.edu/bladder-cancer/WinshipContentPage.aspx?nd=776

This is the page link for Emery Winship Cancer Center it is in Atlanta and I know that is a ways for you. I have traveled for treatment and still do in order to find a specialist.

http://www.urologyhealth.org/find_urologist/html/listurologists.asp

The above is a serach of the AUA data base of Urologists in GA.

Martha Terris in Augusta comes highly recommended.

Seeking a second opinion is the wise thing to do when dealing with the initial diagnosis of cancer. Hope this helps.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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7 years 8 months ago #37124 by sara.anne
Don't know about any good places for bladder cancer in Savannah. There is a center at Emory in Atlanta. You need to be careful when searching. There are places that call themselves "Cancer Centers" that are really for-profit hospitals that make a good profit out of treating any cancer they can get their hands on. You need a place that is not only good in urology (many are good, but specialize in prostate cancer) but that treats a lot of BLADDER CANCER.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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