Update on me

12 years 4 months ago #40285 by alanlee
Replied by alanlee on topic Update on me
Hi folks....its been a rather tough several months for me. I have not felt like checking in here, or seeing anymore doctors, or even talking about anything.

I had the TURP procedure about 6 weeks ago for an enlarged prostate, and also for the bladder cancer removal of any lingering tumor, which was not there.

That is the good news which of course far outweighs the "bad" stuff.

I am not having a great recovery period after the surgery.....just stopped regular bleeding, and I still have some pain and spasms.

I am also having bouts of incontinence mainly at night which is really bothering the heck out of me.

I swear it seems so real when i am dreaming about going to the bathroom, that i think I am actually in the bathroom!

Embarrassing and frustrating to say the least....it has not happened very often, but I also don't feel like calling the doctor. I guess I am just sick and tired of doctors right now and i know at some point that I will call or see the urologist and my intern anyway, so i suppose I am just venting.

My last check up, post op was about 2 weeks ago, and i wasnt having the issues then....anyway, I am still in the all clear zone with the bladder cancer, still non-invasive, and no signs of recurrence, so i have a 5 month reprieve from cysto's......i am HAPPY about that....(next one is end of March)......now I just wish i can have some "normal" bathroom patterns.

I hope everyone has been doing well and will update as I move along.

alanlee :blush:

2/2011: diagnosed with non invasive Type1 stage1...and had turbt in march....first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser....still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another...

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12 years 10 months ago #38097 by dukel
Replied by dukel on topic Update on me
Alanlee; That is great news. What a blessing. Hope all goes well.
Duke

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12 years 10 months ago #38084 by Flamenco.
Replied by Flamenco. on topic Update on me
Great News!
Have a good trip!
Diane

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12 years 10 months ago #38071 by Herb
Replied by Herb on topic Update on me
Have fun in the Mountains --- glad all is well. Herb†

Age 72 had radical 9/11/10 have conduit everything is fine, grateful to be a cancer survivor. Lost Dad and Brother to Cancer both in their 50's.

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12 years 10 months ago #38069 by mmc
Replied by mmc on topic Update on me
Great news Alanlee!!!!

Good luck with the TURP. I was going to get one but I needed a cystectomy so the whole prostate got removed anyway. Good riddance! Caused me problems for YEARS!!!!

Hope the TURP does the trick for you.

Mike

PS: Enjoy that long vacation!

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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12 years 10 months ago #38068 by alanlee
Replied by alanlee on topic Update on me
An update on my doctor visit......2 patholigists analyzed my reports, including Jonathan Epstein, from Johns Hopkins....My fears have been eased as they found nothing but an inflammation, no Cancer recurrence, no need for BCG, and all I need to do is have another cysto in 3 months to keep an eye on it!

I am gonna have it combined with a TERP surgery for the prostate to "roto-rooter" that out......and so far my prayers have been answered!

I can go away for the summer, not have to think about this stuff, and breathe easier!

Again, this forum has been a source of immeasurable comfort to me, and each and everyone i hold dear to me.

Alanlee :woohoo: :woohoo: :woohoo:

2/2011: diagnosed with non invasive Type1 stage1...and had turbt in march....first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser....still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another...

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