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Newly diagnosed Alanjay

7 years 9 months ago - 7 years 9 months ago #36483 by Cynthia
These posts have been moved form newly diagnosed to start their own thread.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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7 years 9 months ago #36482 by BillM
A7wood,

Sounds like great news! Maybe check ups will be all you need. The noninvasive had to be a great relief. Keep us up to date for sure.

Bill

5.24.10 Final staging T2G3 7.28.10 Started Gemcitabine, Cisplatin neoadjunctive chemotherapy
11.2.10 RC with NEO 11.18.11 First year CT shows possible liver tumor
12.8.11 Confirmation of TCC BC mets to the liver 6.27.12 Final round of Dose Dense MVAC
7.26.12 Final scans showed no tumor or no...

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7 years 9 months ago #36481 by BillM
Hello Alanlee!

As you read, learn about some of the cancers pertaining to bladder cancer. Some are very manageable and the check ups are worse than the cure, really! As your reading take notes on each type of BC so when you go to the doc for the results you can have a little more focus on what lies ahead. Until you get the results back, don’t read the worst case stuff, it’ll just add to the stress. Cancer is no fun and all of are to help and answer questions, so stop stressing. Seems like when you talk to doctors and nurses, all you hear is “blah blah blah cancer blah blah cancer…..

Be sure to drink plenty of liquids, helps with the healing. If you have to have another catheter, be sure to get some KY as Mike suggested or a high quality water based gel with lidocaine from the doctor. Don’t get the cheaper stuff, it dries and leaves little bits on the cath that turn into daggers of death. If sitting is troublesome, maybe a big pillow, hemorrhoid ring, or a Boppy.

Everyone here has more than enough information to share. So ask away!

Bill

5.24.10 Final staging T2G3 7.28.10 Started Gemcitabine, Cisplatin neoadjunctive chemotherapy
11.2.10 RC with NEO 11.18.11 First year CT shows possible liver tumor
12.8.11 Confirmation of TCC BC mets to the liver 6.27.12 Final round of Dose Dense MVAC
7.26.12 Final scans showed no tumor or no...

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7 years 9 months ago #36478 by mmc
LOL! That's funny motomike! :D

Alanlee,
Sorry about using the lingo. Thought you may have already come across TURBT. It stands for TransUrethral Resection of Bladder Tumor.

I don't think you are over-reacting by coming to a site like and doing research. Hopefully, the knowledge will help you (as will knowing that there are so many of us here for you). Your wife may also be worried but not wanting to say so at this point. We all deal with scary news differently.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 9 months ago #36477 by motomike
Hi Alanlee I’m motomike, not to be confused with Mike. He’s the younger better looking one and I’m older. I’ll be watching for your path report and stand by to offer advise and/or support as needed. As you can tell from my tag line at the bottom, I’m living proof that bladder problems are not the end of the world. I also had gone 69 years with only minor health problems so I was absolutely snowed when the docs started using long words for test results and treatments. I know it is easy for me to say don’t worry but worrying can upset other systems of your body and just make things worse. We are here to help and will be watching your posts.

I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010

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7 years 9 months ago #36476 by alanlee
thx sara.anne....I will share the report when I get it.....you folks are very supportive.

2/2011: diagnosed with non invasive Type1 stage1...and had turbt in march....first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser....still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another...

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