Make decision

13 years 3 months ago #35608 by GKLINE
Replied by GKLINE on topic Make decision
George
Even though I live in NY state, I was on my way to MD Anderson for a 4th opinion. I was talking to my Dr. here and he spent 6 years at MD so I had him make a NY Neo. If you can.... go there.

I am sorry you had to find this site, but we are all glad to have you here, among fellow survivors. Since you have already graduated to the phone conversation with Mike, You are in Good Hands.... advice wise.

Please keep us in mind as you follow the route to being cancer free. You will get through this and we want to cheer your every step. Half of the recovery process is attitude and we intend to keep your focus up throughout the process.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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13 years 3 months ago #35607 by harleygirl
Replied by harleygirl on topic Make decision
My Dad was diagnosed with bladder cancer when he was 80 and had his bladder/prostate removed by a doctor in Ft. Worth. There were complications and I talked him into seeing a doctor at UTSW in Dallas. This second urologist is top-notch and I would highly recommend him. Who did you see at UTSW? I would be happy to give you this urologist's contact info for a second opinion.

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13 years 3 months ago #35597 by Patricia
Replied by Patricia on topic Make decision
George..i know its a bit of a trip but not that bad ..why not consult with MDAnderson? Three top bladder cancer specialists there....Dinney, Kamat and Grossman. Go to this site and look at their bio's.
www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/genitourinary/doctors-staff/index.html
pat

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13 years 3 months ago #35596 by gwharvey
Replied by gwharvey on topic Make decision
Two Different Drs. the last one in Dec was by the Specialist at the University of Texas.

Once again thanks for your time.

George

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13 years 3 months ago #35595 by gwharvey
Replied by gwharvey on topic Make decision
I am close to Ft Worth and about 30 miles from Dallas.

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13 years 3 months ago #35594 by mmc
Replied by mmc on topic Make decision
George,

It was great speaking with you today on the phone.
Hopefully, the information is helpful to you and it sounds to me like you are on the right track.

Based on what you read me from the pathology report, there wasn't muscle in the pathology sample so they don't really know if it is in the muscle yet or not. You should probably call the doctor back to confirm what I'm saying. I think he (the doctor that did the biopsy) meant that he thought he got a sample that had good margins that went into the muscle. However, according to the pathology report, there was no muscle present to analyze (which means the doctor didn't actually go deep enough when he took the sample). This is not uncommon and is one of the major reasons why bladder cancer is so often under-staged.

The other thing that I am not clear on is if it was the 2nd opinion doctor that did the 2nd TURBT (biopsy) or if it was the original urologist who did both.

Let us know if there is anything else we can help you with. Many of us have been there and done that and are happy to help!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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