Different bladder replacements

13 years 2 months ago #35663 by Patricia
Replied by Patricia on topic Different bladder replacements
I think it might have been Studer in 1989......or at least one that worked!
One of the reasons i picked the Indiana Pouch was i figured if i became incompacitated it would not be a big deal to cath me through my navel...if, of course, they remembered to do it.
pat

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13 years 2 months ago #35662 by mmc
Replied by mmc on topic Different bladder replacements
It's Indiana pouch, not INDIAN. Looks like 1987 is when it was done at Indiana University Hospital. There is a reference to when their work was published in the Wikipedia article. en.wikipedia.org/wiki/Indiana_pouch#cite_note-0

Don't know when the neobladder got it's start.

Not sure about the caregiver part so I'll have to let someone else step in to answer that.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 2 months ago #35661 by gwharvey
Replied by gwharvey on topic Different bladder replacements
The neo bladder is the newest. Does anyone know how long they have been used? What about the INDIAN Pouch how long have they ben used? Does anyone now someone that has had either for 15 years and have they had problem after 10 years? What is easier for a caregiver if you get old and can not take care of youself? Just some questions.

George

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13 years 2 months ago #35585 by mmc
Replied by mmc on topic Different bladder replacements
Hi,

Motomike sent me a PM about the link not working. I fixed it in the above post and am also posting the link here again. It appears that 'tinyurl' may expire after some time if people don't use the link or something.

I'm posting the full link here to avoid any problem with that in the future: Link to post titled To Neobladder or Not to Neobladder That Is My Question

Hope this is helpful. It was to me. I ended up deciding to get a neobladder and I'm happy with it. I had/have a number of complications, but I'm still happy with it.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 2 months ago #35566 by Cynthia
Replied by Cynthia on topic Different bladder replacements
This should give you what you are looking for and a few others.

bladdercancersupport.org/index.php?option=com_content&view=article&id=486

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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13 years 2 months ago #35565 by motomike
Replied by motomike on topic Different bladder replacements
gwharvey

You are right. The link doesn't seem to work. Maybe Mike can repost it. I'll pm him.

I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010

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