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Just diagnosed.....

9 years 3 months ago #34892 by Nix
Hi Carolann,
You have come to the right place, Welcome :)
We have all been where you are right now. I went through 24 BCG washes, and you are having the classic reactions to BCG. Listen to Pat, and do a second opinion, and send the slides away also, for a second opinion. (most Insurance companies allow for that).
Good luck with your BCG, keep us informed on your progress, and ask as many questions as you wish :)

Nancy S
dx Ta 11/06
dx Ta CIS 10/07

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9 years 3 months ago #34891 by Patricia
Carolann where are you located?
T1G3 is a tricky one and your uro is doing the right protocol by doing the second TURB to make sure all margins are clean and no reseeding. Its absolutely possible to have flu like symptoms after BCG. Everyone reacts a bit differently. What you want to watch is how long it goes on. This is the best paper on BCG i've come across
We've all been in your shoes and its very frightening but we're here to help guide you and answer any questions. There are no dumb questions.
Its always a good idea to seek a second opinion when cancer is involved. A second look at pathology always a good idea and we can help there also.
I can relate to the panic attacks also..Ativan is my friend!!

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9 years 3 months ago #34890 by Carolann
I was just diagnosed in August and like everyone else, really scared. I had my first TURBT in August and the second one in was T1 G3. I did have a terrible time with anxiety attacks after the second surgury but have managed to get a better handle on that. I started the BCG treatments in October and am half way thru. The only problems that I have experienced so far is fatigue and achy muscles. I am hopeful that the BCG will work as I don't relish the idea of having the bladder removed. Has anyone else had the fatigue and felt like they were coming down with the flu after the treatments. Any help or advice I can get is apppreciated.

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