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One day post op

8 years 4 days ago #35358 by CatherineH
Hello Flo... Just thinking about you and wondering how you are feeling now that you've been home for a few weeks. I sincerely hope that everything is going well and that your recovery is on track. Check in with us if you have time during this busy time of the year.

Hugs,
Catherine

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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8 years 1 month ago #34943 by jj803
Hi Flo,

Good to see your progress and your return to home. I am glad that you took that break on the way back. Since you are still in a relatively early post op period the risk for clots is still there and riding in cars, trains, and planes is best done with some activity on an hourly basis at least. We broke up our ride back from Nville, as well at about the 45 minute mark, just wish I had emptied the leg bag there, but it was just a rest area without facilities so I let the bag continue to fill and it was quite full with at least 500cc by the time I emptied it. Very stupid on my part, but you get to learn so many new things along this path. I hope your pain soon subsides and that your recovery will be very, very boring. Best wishes,

jj

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8 years 1 month ago #34942 by Patricia
Flo..did they give you more than one drain when you left the hospital? I had an extra as i had to clean out one every day..put a little soap in it and run water through it and hang on a towel rack to dry naturally. I had a long drain and large bag for night time and a shorter one for my leg bag which i wore during the day. You've got a lot of mucus in there which might be clogging it up.
As far as sitting on the toilet and thinking you have to pee that still sometimes happens to me 8 yrs later. Its hysterical..there must be some memory cells in there!! We've all done it!! :laugh:
pat

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8 years 1 month ago #34940 by GKLINE
Way to GO....FLO! :cheer: :cheer:

You are an inspiration to everyone on this site! There are certainly people reading your posts who can find hope in their futures! I, and all who read your posts, are encouraged by your "never Quit" attitude!

You know this is a team situation. The Dr. is important. But you also give great kudos to your husband(he is going through this just like you) the nurses, your friends, the hospital support staff( I had a special relationship with the cleaning people) and everyone who touched your life in this war.


Get well! I know you need a Big Cheer! :cheer: :cheer: :cheer:

Three of them

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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8 years 1 month ago #34938 by CatherineH
Welcome home, Flo. I'm so happy you have reached this milestone. Things from here out should only continue to get better, maybe with some minor bumps in the road, but hopefully they will be few and far between.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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8 years 1 month ago #34936 by Flo
Well it is 6 days post op and all is going well. yes Sara Anne you really never know how many people truely care about you until something like this happens yes you know you have friends but the ones that stand by you through something like this are your true friends. And yes the Hubby is pretty darn amazing praise be to God on that one cause he and he alone has given Hubby the strength to put up with me for 29 years and still say he likes me. :laugh:

Went home yesterday, never new how far it was from Nashville to Crofton Ky, okay I new just did not know that 80 miles could seem like an eternity, stopped at a rest area to walk for a few minutes could not stand sitting any longer felt things were backing up knew I would prolong the trip but also knew I had to get out of that car and walk a few minutes. Felt much better for doing so. Got all the drains out except 2 the stoma tube which is clapped off and the malecot cath. So it is vry strange to me to be encouraged to pass gas girls don’t do that so my husband has had a good laugh lately with some of the things I have said about passing gas. I don’t know if I am the only weird one out there but it is like I have to sit on the potty to really be successful (I know TMI)so I find myself sitting on the potty for this purpose but then other times I think my brain has not 100% accepted the fact that I do not have a bladder and I think I have to pee is this totally weird or what? The other thing is how do u ever feel like you have finished your business if u don’t pee I mean they go hand in hand?
I managed to get about 2 hours of uninterrupted stretches of sleep I felt like my cathwas backing up and sure enough I had to get up and walk to make it drain correctly is that normal? It is so positional I have to lift the tube up put it down lift it up get up walk around and finally get it to work correctly. But really other than the pain and the need to get about 36 good hours of sleep I am good especially since I don’t think the sleep thing will happen for a very long time and the pain will ease up at best with pain meds. Thanks again guys, Flo

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