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second opinion in Southern Oregon needed

8 years 1 month ago #34770 by Cynthia
Clueless, I am very happy that this thread has been such a good one. It has now ran to eight pages and I am locking as it is getting two long and is now covering different subject making it hard for new people to follow and search. Would you please do me a favor and start a new thread? I am very happy you and your husband are a part of our community.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
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8 years 1 month ago #34763 by clueless
I guess one relies way too much on the Docs to make the decisions.

Luckily our insurance allows referrals to specialists, or even visits to any other docs without any referral.

One just needs to make use of it.
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8 years 1 month ago #34754 by mmc
So the moral of the story is to tell your daughters and granddaughters and nieces to INSIST on a referral to a urologist if multiple UTIs in a year or ANY blood in the urine. Better safe than sorry.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
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8 years 1 month ago #34751 by Patricia
If its any comfort and i know its not...we're all pretty much ignored at first...usually females as if we get blood in the urine they think its coming from a female organ and if its microscopic they just sluff it off and attribute to a bladder infection. I had symptoms for 3 yrs and it did not get the attention of the doctors until i had gross hematuria. So its just not the older ones. Many bladder cancer patients are diagnosed way too late. I was lucky as mine was small and a low grade but became lethal......but oh the stories that could be told.
pat
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8 years 1 month ago #34743 by clueless
Well, the first was a military hospital in Oakland, Ca that is now closed.They did absolutely nothing, they asked questions about how often he urinated and shrugged it off.

The second was a doc in Grants Pass, he did a finger probe and shrugged it off.

The third is local, and he shrugged it off until George had blood in his urine, a few weeks after being treated for a bladder infection because his bladder hurt. He is the one that then referred him to the Urologist.

The older he got, the less anyone was interested in the issue.

Supposedly the older the person, the slower the cancer grows, and something else will get them before the cancer does. How do these people purport to know how long a person will live? They must have some special pipeline none of us mere mortals are aware of.

I wonder how many people have died because of that attitude - I bet it's massive.

I am in my late fifties and they insist on mammograms and pap smears - and I have no complaints at all. Why didn't they have a look at George, just once in 15 years, when he kept complaining? Nuts!
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8 years 1 month ago #34740 by mmc
Well at least they should have done a cystoscopy!
It is a surprise that they didn't do that.

If it is bladder, urethra, and prostate, it sure sounds like it should come out and he should get either an Indiana Pouch or Ileal Conduit.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
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