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Getting the slides for second opinion

8 years 3 months ago #33799 by Nix
My Uro mailed mine right to John Hopkins, when I requested. I heard from JH within two weeks - I was surprised at the quick turn around. Actually the pathology at the hospital matched John Hopkins' report.

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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8 years 3 months ago - 8 years 3 months ago #33796 by Patricia
I had no problem at all..they had them all packed and ready to either mail or take with me...bubble wrap included. They just needed a heads up as to when i needed them. And by the way i never went through the Uro..went directly to the Pathology department for the slides and Imaging for the CT scans and reports.
pat

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8 years 3 months ago #33787 by Cynthia
I had trouble with my local Uros office requested them and so if I wanted them sent I had to pick them up and mail them. This was a local hospital and that was their policy. I agree that they should though.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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8 years 3 months ago #33786 by mmc
If you are filling out the form that you're supposed to give to the doctor or hospital, they should mail them for you. Your uro should also send all of your records to them.

I picked up my own and took them with me because I was going to two different bladder cancer hospitals in two days (University of Colorado and MD Anderson) but I am pretty sure they came in a pack that I could have sent via fedex by just dropping in one of their envelopes.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 3 months ago #33785 by Cynthia
This is a link to the John Hopkins link for online pathology second opinion it may be the one you have. But yes you may have to mail your own slides but this page tells you how. Some places will mail them for you if you ask and some ask for you to pay for the service. And some just hand them to you. If they are like mine where there was a box and they were well packed and I could just put them into a bubble envelope.

http://pathology2.jhu.edu/bladder_cancer/consults.cfm

I would tell them at the pathology department what you want them for and that they need to get there, sometimes you can find a kind soul. Or call your doctors office and ask for their help sometimes pathology will send things at the doctors request and not the patients. And yes before you notice medical institutions are bureaucracies and have their own ways of doing things.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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8 years 3 months ago #33784 by Kimberly
Like Ernest Hemingway's quote: "One cat just leads to another" -- except in my case, it's questions!!

I got my pathology report. NP was right -- it only says high grade. I guess the second opinion is even more important now!

I called the pathology department at the hospital and was told I needed to come in and sign a release. Okay, makes sense. They asked where I wanted them sent and I said Hopkins. Did I have all the information?

I found a PDF file on the JHU website and started filling it out -- will have to finish it later. Do I just hand that to them and expect them to do the rest? I have this image of me being handed a box of glass slides and heading to the post office, trying to figure out which priority mailing box is the right side and whether to use packing peanuts or bubble wrap. That's not going to happen, is it?

To complicate matters, we're heading out of town tomorrow for two weeks. If I don't do this now, will the slides likely be available in two weeks to do this at that point?

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