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please tell me

8 years 3 months ago #33642 by Alan
I am chiming in with what is not meant to be confusing addition. As all the others have said wait and see what the Ct scan says. Not to add too much information but, I know of 2 people that have bleed microscopically over the years with no known cause. Can also be a passed kidney stone among other things nicking ureters causing bleeding. As Cynthia said so far you have had good news and we all hope it stays that way. One day at a time!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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8 years 3 months ago - 8 years 3 months ago #33635 by mmc
You said your mom had blood in the urine which started this whole process. He didn't see a tumor and I'm guessing the cytology was also negative so he is checking to see what else may be the problem. If the doctor says he doesn't think it's serious but wants to run more tests to see what's causing the blood, why would you think otherwise? Sounds like your mom got some really great news.

Maybe go out and celebrate? :)

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 3 months ago #33630 by DougG
Lena,

Speaking as a caregiver (Doug's wife), I can totally understand the freaking out part. Freak out on the forum all you want...but like the others have said, please try to stay calm for your Mom. Hope the doctor has good news to tell you.

Anita

Anita
Forum Moderator
Caregiver

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8 years 3 months ago #33618 by GKLINE
Lena
The Dr. is going through every possibility during his diagnosis period. This is a very important time and a good diagnostician follows a logical path to determine what is going on.
Please stay calm and let him follow his path. You, hopefully, will find a much less serious reason for your mother's symptoms.
Our prayers are with you and please be the calming force for your mother. She needs a strong and calm rock during these tests.
Knowing the possible worst cases is one thing. Jumping to conclusions is quite another.

Sincerely
George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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8 years 3 months ago #33613 by lena
Thanks agan,
here is the update , we went for cystoscopy and dr did a biopsy but he told there wasn't any tumor or cyst , he believes shouldnt be anything serious , but he also want her to do a ct scan of pelvis and abdomen. I am now confused . Can there be bladder cancer with no tumor or cyst? or may be he is suspending to other organs??
I am helpless

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8 years 3 months ago #33578 by Cynthia
She does not need to prep for the cystoscopy other than if the doctor has given her any instructions he feels is important. The cytology is looking for any stray cells that look different from the other cells. If they find suspicious cells they know it may be something and they do further tests. Cytology works but it still has faults positives and negatives so again it works well with cystoscopy as an added tool.

By the way there are not many rules here except for the things you learn in kindergarten. And if you do break one we promise not to send the bladder cancer police to your house.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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