9 years 6 months ago - 9 years 6 months ago#33096by Alan
Most of us on this board are indeed BLC survivors and would say-stop, take a deep breath. One step at a time! Easy for me to say but, I'd wait (yes with concern but not worry) until the tests comeback! Somethings you can't control and getting aproper path report over a weekend is one of them. We all trust it isn't cancer. Keep this board advised as someone is usually lurking sometime during the day.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
I meant to add: it could be worse, but it's out of the blue and very stressful to think about. I know I should wait for the urologist to tell me what happened, but it's hard even to work thinking that one may need surgery for removal and then live with the uncertainty.
I had an unpleasant surprise recently. I recently had a kidney stone which passed, and I went for a follow-up urological procedure (IVP and cystoscopy). So, I didn't have any more stones. But the doctor said he found a small polyp near my ureter which he biopsied and sent for pathology, and I have a meeting next week to find out whether, apparently, I am a cancer patient or not.
I'm in my 30s, don't smoke or work in an industrial occupation, and am in general good health except for some weight issues. I should not be in a risk category for bladder cancer. This was asymptomatic and a purely incidental diagnosis.
But I am kind of anxious and have been obsessively googling what this could mean for me. I am hoping that it is just some kind of fibroepithelial false tumour or cystitis due to the irritation of the stone, which sat far down my ureter. I doubt I have anything more than a "benign" polyp, if you can call them that. But am I staring down the barrel of, at minimum, a decades-long life of annual cystoscopies?