9 years 2 months ago - 9 years 2 months ago#32735by Alan
Both Pat and Mike have steered you right. Plus MD Anderson is only 2- 2 1/2 hours from LaVernia (I live in New Braunfels). No question what I would do especially in muscle invasive. Lots of helpful people and lots of close by accomodations that are reasonable including a Marriot that is connected via walkways. http://www.mdanderson.org/patient-and-cancer-information/guide-to-md-anderson/services-and-amenities/rotary-house-international/index.html Another link: http://www.mdanderson.org/patient-and-cancer-information/guide-to-md-anderson/index.html
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
9 years 2 months ago - 9 years 2 months ago#32734by mmc
The "other complications" you mention are not really major issues for having surgery assuming that he is being treated for the high blood pressure and cholestoral and that treatment is keeping those in check.
As Pat mentioned, the really big difference is getting a top surgeon to do the cystectomy and T2 means cystectomy. They always remove the prostate at the same time in men because of the high probability of spread from the bladder. They also remove a good number of lymph nodes to evaluate them to be sure it has not spread to the lymphatic system.
If it has not spread outside the bladder, and from what you stated, that sounds like the case (but needs to be confirmed), the prognosis is pretty good as long as he gets the cystectomy.
pT2a: Tumor invades superficial muscle (inner half) ... NX: Regional lymph nodes cannot be assessed ... MX: Distant metastasis cannot be assessed
He's got a lot of things to be considered. First of all i would recommend your father go to MD Anderson for a second opinion and for treatment. Dr. Kamat is very good at handling difficult cases plus they have a multidiciplinary team to consult on all the other issues. Also Dr. Dinney, and Dr. Grossmann
I'm sure Dr. Hakim is a good urologist but he's in an office setting and i can assure you he does not see the volume of bladder cancer that MD Anderson does. This is a highly specialized field and you want a top surgeon.
With the invasion just into the first layer of muscle its imperative that he have a cystectomy and reconstruction. I had the same thing and am alive and well 8 l/2 yrs later as i had a surgeon well trained that does 90 plus a year.
Make your appointment and they will tell you what to bring with you. Its just a matter of contacting the hospital and signing release forms for the pathology and slides and any other tests they may have done. Did he have a CT scan or bone scan, blood work? They will do all those.
Don't get to far ahead of yourself. There is a lot of good information on the Home page here on newly diagnosed. You're very fortunate that you're close to one of the top hospitals for bladder cancer.