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Please help! My father was recently diagnosed

9 years 5 months ago #32771 by Dee Ann
Well, they had their consultation today. I'm not sure what to think. My dad said that since their meeting last Friday he has discussed the case with other doctors and decided to hold off on surgery. He said they think it was caught early enough and may be able to get rid of the remaining cancer with chemo and radiation. Your thoughts?

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9 years 5 months ago - 9 years 5 months ago #32752 by Alan
Dee Ann,

I know many vets that used MD Anderson (assumonmg your Dad is a vet). I am certainly not knowledgeable in that area as I am not of medicare age yet. Worst case is I'd give them a call. You want sub-specialist (bladder only) vs. a urologist (speciality).

UTSA is great in some areas but not best known for cancer. While I haven't had to use either complex MD Anderson is where I am headed should my case need further work.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 years 5 months ago #32751 by Dee Ann
He is a veteran. I don't think he's trying to stay within the military medical community though. It just happens to be the most prevalent in San Antonio since it's such a military city. After reading the doctor's resume I'm not too impressed especially since most of his work has been in the military and I don't see any specialization in bladder cancer. I don't trust the VA any further than I could throw them. :laugh:

Thank you, Mike, for that post earlier. I went to your link and it sufficiently scared me. It does make sense and I pray my Dad listens to me and also takes your advice (I forwarded it to him).

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9 years 5 months ago #32750 by mmc
Is/was your dad military? Is he trying to stay within the military medical system? That would be a mistake.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 5 months ago #32749 by Dee Ann
That's what I would've thought too Pat but I don't know much about Medicare. I'm still working on them. I think they need to stop worrying about money and get him the best care we can. I don't feel comfortable with him staying with his current doctor. http://www.urologysanantonio.com/Uploads/Documents/CVs/HakimCV2009.pdf
That is a link to his doctor's resume.

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9 years 5 months ago #32748 by Dee Ann
I'm finally home and able to try some of those links. GREAT information! Thank you! I have directed my Dad and Step-mom to this site. Maybe there's still hope.

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