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Please help! My father was recently diagnosed

9 years 2 months ago #33257 by DadsRN2010
yes

he started the robotics over at stonybrook.

all suggestions welcomed as i will help my father adapt to this new lifestyle with an upcoming NEO BLADDER. THANKS!!!!

**Carolyn, RN

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9 years 2 months ago #33255 by Patricia
Carolyn,
Stonybrook has 3 urologists..one in prostate specialization ..one does not mention reconstruction and all have office locations which means that they do not get the volume of bladder cancer patients that the high end cancer centers do. You have Memorial Sloan Kettering right there with 7 people who specialize in bladder cancer and one of them the grand poobah of bladder cancer Dr. Harry Herr and a multidisciplinary team to carry him through every stage not to mention top pathologists in the country.
http://www.mskcc.org/prg/prg/bios/54.cfm
Also Dr. Bochner is highly regarded
http://www.mskcc.org/prg/prg/bios/616.cfm
Also Dr. David Chan just took over as chief at Long Island Jewish Hospital..he was one of 3 top docs at Hopkins in the bladder cancer department.
http://www.northshorelij.com/NSLIJ/David+Chan,+MD+New+Vice+Chairman+of+Urology
If your thinking of the DaVinci your doc better have at least l00 under his belt or he's still practicing.
Bladder cancer is soooo highly specialized i would reconsider if insurance allows to go to a high volume center and one that is at least ranked highly.
Pat

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9 years 2 months ago #33251 by DadsRN2010
sorry Patricia!

stonybrook university.

all suggestions welcomed as i will help my father adapt to this new lifestyle with an upcoming NEO BLADDER. THANKS!!!!

**Carolyn, RN

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9 years 2 months ago #33249 by mmc
DadsRN,

It would be really good if you post your own thread in Newly Diagnosed or in Invasive. Tagging on someone else's can cause confusion about who's who.

In any case, I have a neobladder so I know about the surgery and I also know it is important to get to a surgeon who does tons of these surgeries a year.

It is a very specialized surgery to create a neobladder.

If he has questions, have him come on line here. We're a no holds barred group so he can ask anything and those of us who have been there/done that are happy to share.

You can ask anything as well. New York has top bladder cancer hospitals and top bladder cancer surgeons.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 2 months ago #33248 by mmc
DadsRN,

It would be really good if you post your own thread in Newly Diagnosed or in Invasive. Tagging on someone else's can cause confusion about who's who.

In any case, I have a neobladder so I know about the surgery and I also know it is important to get to a surgeon who does tons of these surgeries a year.

It is a very specialized surgery to create a neobladder.

If he has questions, have him come on line here. We're a no holds barred group so he can ask anything and those of us who have been there/done that are happy to share.

You can ask anything as well. New York has top bladder cancer hospitals and top bladder cancer surgeons.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 2 months ago #33247 by Patricia
OK i'm stuck...what is USB? What part of New York are you in?
pat

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