Kenneth,I to have CIS in several areas in the bladder. I went to MD Anderson for my second opinion and was very pleased with the care I received. I plan to go back in August after I finish my BCG treatments. I just had my 4th BCG treatment yesterday. I am now taking 1/3 dosage because I had a very hard time with the 2nd & 3rd treatments.
The doctor I am seeing at MD Anderson is Dr. Grossman. I sure hope and pray he is good, Maybe others will direct us if they have had a bad experience with MD Anderson.
You are doing the right thing by going to Kamat at Anderson. They are highly ranked in urology. # 1 in Cancer and #9 in Urology as ranked by US News and World Report.
Hmmmm....He doesn't know if its already in the muscle and wants to start BCG? There couldn't be any invasive identified if he didn't get a deep enough specimen.
Let us know what Dr. Kamat says. Get all the slides from this TURBT to take with you and get the surgery notes and any other doctor notes your urologist has. He should have copies of your pathology report also.
Met with URO today. Dx: widespread CIS in bladder. He could not complete the resection because of the extensive coverage on the inner lining. 4 out of 5 biopsies show CIS, no invasive carcinoma identified, the 1 that did not had a single von Brunn's nest identified. I was told that he did not go into the muscle for the biopsies because of the extent of the surface CIS. He wants to start BCG as soon as the bladder heals enough. I have read that investical treatments are not effective for the vonn Brunn's nest and should not be used? We talked about 2nd opinions again, this Doctor does not like MD Anderson Urology,he said they do great work on other cancers but fall behind on the urology side. He recommends Dr.Ian Thompson at Texas Health Science Center in San Antonio. I have an appt. on the 15th with Dr.Kamat at Anderson that I am going to keep.