On the point of worrying about cancer everywhere, it sounds like both of you are early on so the probability of it being anywhere else is very low.
Of course the docs will do some scans to check that but worrying about that isn't go to help it go away or change the facts. Worrying does cause stress on the body and mind so it does have a down side. However, I understand it is kind of like me saying "No matter what you do, don't smile." You will almost be compelled to smile. SO...it's ok to worry some but don't be consumed with worry. Spend time researching, but not all willy-nilly all over the internet. We have lots of good information in the information section of this website and there are links to other reputable sites.
It doesn't hurt to share you concern with the doctor. He/she may be able to explain more. Other people here on the site may as well.
Dpoe: We (you, me, anybody else) don't even know if you have bladder cancer for sure if you haven't had an actual biopsy, unless I'm reading your post wrong. You really should get the info from your doctor right away. Questions: Doctor, do I have bladder cancer? If he says yes, then: How do you know? Please send me the pathology report. Did it say high grade/low grade or what? Were there sufficient margins to get staging?
If you don't ask, some doctors don't seem to want to tell. If there was a pathological evaluation done it would most certainly be back to your doctor by now. Those records belong to you and you should get copies of them. You just need to sign a release that you give permission for you to see your own records.
Might be you don't have bladder cancer. Might be one small occurence of low grade cancer.
I did have a twilight or whatever its called for the surgery. He said it didn't go into the walls. Can you have an infection without it showing up in your urine? I am so out of sorts and confused about all of this. I just want the burning to go away so I can try to live again, and not have this on my mind constantly. The burning isn't far up, it down lower. I don't know if this burning after I'm almost done urinating is what they call bladder spasms or what. Then I was wondering if it could be some sort of yeast infection. I guess I have to wait to get to the doctors. Does everyone have some sort of treatments when they have bladder cancer or are there some that don't. Are there some tumors that never come back?
Also my doctor, when I asked if it is cancer, said that all tumors are cancer. Did anyone ever hear that before? And one more thing, will I see the scabs coming out? The procedure he said he did was scraped it out. He said bladder cancer is a lot like skin cancer, when it comes back you just scrape it out.
Brenda....if you are still having burning you must have a cytology before any BCG treatment to make sure there is no infection. And as you said you had blood earler this week...i don't think BCG is a good idea with hematuria and/or infection
I am also new to bladder cancer. I have had two surgeries for tumor removal. I had blood and burning off and on and still do. I will receive my second in six BCG treatments tomorrow. When I had my first cysto after 3 months my doctor found more cancer and this time it is CIS. Like you I worry about cancer being in other places. I guess this is normal, however we need to be positive to fight this. I can not help but think about this cancer inside of me all the time. From what I am reading this will be along journey and a constant watch to make sure it dosen't come back. First we have to get rid of IT.
You did have the procedure done in a hospital with anesthesia correct? I hope.
It usually takes about 5 days to get pathology back. Its imperative that he got part of the muscle to be properly staged. If you got your catheter out immediately after the procedure that means your urine was clear. Many insist on leaving it in a couple of days......though mine didn't and took it out right away when i woke up.
Burning after this period of time would suggest an infection and there is something for that along with antibiotics. Make sure you tell him how long its been going on.
Where are you located?