Forum

× Welcome click the New Topic button to post

After Having the tumor removed

9 years 3 months ago #32295 by Patricia
Bpoe...i was diagnosed 8 yrs ago with invasive T2a bladder cancer which meant that the tumor went into the muscle...there are 2 layers of muscle..mine was just into the first layer which is why its T2a but strangely enough it was a low grade...so i figure it must have been there quite a while. I had my first TURB and trust me i had no idea what that meant either here locally because i was scared and really didn't know any better. I quickly got my brain working after i got the pathology and headed to one of the top Cancer Hospitals in the US..Memorial Sloan for a second opinion. My husband and I flew there from Ohio. They determined i needed a re-turb as the slides were not good enough and i'm sure that surgeon saved my life as he went in there and got all of the remaining tumor and the margins. Because it was invasive I then had to decide on what kind of diversion i could deal with. I now have an Indiana Pouch which works perfectly and thats probably more information than you wanted. Take it a step at a time. Whenever cancer is involved you always want a second opinion..doctors know that..they encourage that..mine did.
pat
The topic has been locked.
9 years 3 months ago #32294 by dpoe
Pat,
what your diagnosis
The topic has been locked.
9 years 3 months ago #32293 by Patricia
Unfortunately No there is not a closer hospital. U of Pittsburg has some great urologists but their specialty is in Prostate Cancers, Kidney stones......there is noone that specializes in bladder cancer specifically. I would consider maybe having a TURB there but not reconstruction if that should be at all necessary. For a second opinion if you do not want to travel to a top bladder cancer center here are 2 that are top rated uro's but not specific to your field.
There is a Dr. Hrebinko
http://findadoc.upmc.com/PhysicianBioQuery.aspx?ID=524
There is Dr. Stephen Jackman
http://findadoc.upmc.com/PhysicianBioQuery.aspx?EPCDID=57418
pat
The topic has been locked.
9 years 3 months ago #32292 by dpoe
This is for Pat and Mike

I read again your posting about the second opinion at a Urology center is a must.

Pat, in yours I read that Universities are also great places too. One of them was the University of Pittsburgh. Is that in fact a good place to go for a second opinion? Do you know much about them?
The topic has been locked.
9 years 3 months ago #32291 by mmc
dpoe,

Not that I know of but Pat may know one closer. Just for the reTURBT and evaluation of everything you have had done, it's probably worth it to get to Cleveland Clinic. You could then see who they would recommend locally.

Depending on what your treatment needs to be, could be you could do even closer to your home for follow up treatment.

If you get your pathology report tomorrow (you can have them scan it and email it to you), type the information up in a post here.
Once we have that information, we can give you more specific guidance.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
The topic has been locked.
9 years 3 months ago #32290 by dpoe
I was just hoping that there was a very reputable hospital in Pittsburgh that has highly qualified specialist for bladder cancer. It is just 1 hour away from where I live and was just hoping one of their top hospitals were among the top rating specialty hospitals
The topic has been locked.
  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 1517 Guests 

Statistics

Today Total Opened: 0 Today Total Answered: 0 Latest User: eggie
Yesterday Total Opened: 1 Yesterday Total Answered: 1
Total Posts: 52640 Total Subjects: 6839 Total Users: 8400
Powered by Kunena Forum