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Bladder boipsy

8 years 7 months ago #31865 by Moonerj
The email and phone # is a bladder cancer patient that goes to Huntsman. She lives I think 2 hours from Salt Lake City.
Kandi does not live in St George.
She would be happy to talk to you.
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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8 years 7 months ago #31864 by kmcintosh
thank you for the info.
My husband is having the biopsy May 18th here in St. george,UT.
We are seriously considering going to Huntsman for second opinion. The email and phone # you gave is that for the person in St. George that had bladder cancer sugery?
we are just a little nervous this is all new to us. We want to be as informed as possible.
Thank you again.
Kathleen

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8 years 7 months ago #31863 by Moonerj
This is from a friend in Utah with bladder cancer

My uro is Dr Robert Stephenson at Huntsman Cancer Center. The other really good one there is Dr Dechett. I know of a guy who was treated in St George, but I don't know any of the particulars except that it has been 2 1/2 yrs and he has never had a recurrence. She can email me at This email address is being protected from spambots. You need JavaScript enabled to view it. or call 208-201-4609
Kandi

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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8 years 7 months ago #31845 by Patricia
I only see 4 uro's in St. George at Dixie Regional...of the four i would pick this one as he has trained at Portland which is an excellent center for bladder cancer.
http://intermountainhealthcare.org/providers/profile.html?id=27261&brand=ih
Its about a 4 l/2 drive to Salt Lake City but believe me it would be worth your while to do so. Being at a comprehensive NCI center and a multidisciplinary team and better pathology is very important. Plus everyone kind of brushes off a TURB as a simple procedure..it isn't. The bladder is very delicate..it can be easily punctured by an inexperienced surgeon who does not do this procedure on a routine basis. Its also very important that he gets all of the tumor including a part of the muscle plus all the margins. Its not something i would want a uro who mainly sees prostate patients to do. Ask your surgeon how many TURBS he does in a week. My surgeon does them every day at a major cancer center, 4 days a week and approximately 20 a day.
Pat

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8 years 7 months ago #31843 by mmc
From your message, it sounds as though they haven't done the first TURBT (biopsy) yet.

It should be fine to get the tumor removed there locally but as soon as it confirmed as bladder cancer, the next step is to get to the best bladder cancer center that you can.

There, he should get a second TURBT done around 6 weeks after the first. This will be done to ensure that they got good margins and nothing was missed. Bladder cancer is frequently understaged so this second TURBT is important as is getting to a top bladder cancer specialist.

If it has to be Utah, then the one pat mentioned. If it can be elsewhere, you may want to check out MD Anderson in Houston.

Treatment Guide for Patients

Click the link above for a flow chart of the treatment process that I put together for patients to use with their doctors.

If caught early, and treated aggressively, bladder cancer is very treatable.

Feel free to ask any questions or have your husband log on and ask questions himself. Many of us have been where the two of you are right now.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 7 months ago #31838 by Patricia
The only NCI designated cancer center is located in Salt Lake City...I see only one uro/surgeon who deals with bladder cancer
at the Huntsman Cancer Center associated with the U. of Utah.
Dr. Dechet...has some good training
http://www.huntsmancancer.org/patientInformation/bios/dechet.jsp
I would definately get my second opinion there. If you can travel out of state i can give you further references.
Do you have pathology back on your tumor?
Pat

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