Forum

× Welcome click the New Topic button to post

Afraid and needing advice

9 years 1 week ago #31893 by New Diag 7
Insurance is pretty broad....as long as the doc is in the network. Sexton, Lockhart and Root are.
I do not and have not needed referrals yet.
Thanks for the other info...I will share the info with my husband and we will ask.

Thanks Pat....on hold with insurance co now.
Cher

Please Log in or Create an account to join the conversation.

9 years 1 week ago #31890 by Patricia
Cher..i'm surprised it wasn't the first question!! Usually is.
It all depends on where the cancer is and location to the nerve bundles and they'll only know that when they get in there. And it depends also on the doctor if he does nerve sparing if possible...ask. I would also let Dr. Lockhart know that his person on the phone certainly does not understand what is involved with a cystectomy and should be educated or fired.
Where does your insurance allow you to go?
pat

Please Log in or Create an account to join the conversation.

9 years 1 week ago #31889 by Nix
I missed your post by a minute. Dr Lockharts office will refer you to Dr Sexton, if you want. The way Moffitt is set up, I think he has to refer you, and he could probably get you in sooner, after your appointment with him, than you could by calling on your own.
I guess if you want to go the Dr. Sexton instead of Dr. Lockhart, you could call Dr. Lockhart and ask the protocol. Maybe his receptionist meant he doesn't deal with just prostrate cancer, but does deal with the prostrate when working with the bladder cancer?

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

Please Log in or Create an account to join the conversation.

9 years 1 week ago #31887 by Nix
OK, now you have the information you need to move to the next step. Moffitt will read the slides (actually, I believe a team of doctors will read the slides), but I also had the Uro's office send the slides to John Hopkins for another opinion. JH is quick with response.
Like Webs said, take a deep breath, this is the information you were waiting on to proceed.
Take care and know that we are all here for you and your husband...

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

Please Log in or Create an account to join the conversation.

9 years 1 week ago #31886 by New Diag 7
Okay Pat....thanks for explaining that. I just received a call from Lockarts office wanting to move my husbands appt up from June 3rd to May 25th. Don't know why...but I took it. When I had originally called Lockharts office, they told me he does not work with prostate, but since you had recommended him, I ignored the receptionist and told her to just make the darn appt. Better to talk to the doctor.
I am waiting for a call back from Moffit because the ding dong there could not figure out how to input the insurance info. Sigh. They told me Sexton would see him because the primary site of origin is bladder even if it went to prostate. Do you think I should make appointments with any others? I want to have this covered and want only the best if a RC is what is in the future? If they remove prostate, does that mean impotence?
I could care less as long as he is alive...but that was one of the third questions out of my husbands mouth.
Thanks
Cher

Please Log in or Create an account to join the conversation.

9 years 1 week ago #31883 by Patricia
Cher...mike is right..don't panic.....i'm quite sure that Dr. Lockhart does prostate as that is routine with a cystectomy. I think Lockhart works with more cystectomys than Dr. Sexton as Sexton works a lot with non invasive..but you can ask.
It is possible that he removed it all with the resection...I had muscle involvement and my second surgeon was able to get it all out...doesn't mean it won't be back but it buys some time. 6 weeks is the usual time for cystectomy after diagnosis especially if into the second muscle of the bladder.
Pat

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 658 Guests 

Statistics

Today Total Opened: 0 Today Total Answered: 0 Latest User: Momar
Yesterday Total Opened: 1 Yesterday Total Answered: 3
Total Posts: 51992 Total Subjects: 6723 Total Users: 8184
Powered by Kunena Forum