Hi Mike....you have no idea how that flow chart has helped. I have that flow chart in a clear plastic folder at the beginning of our medical notebook. It is very helpful.
Thank you again and I will pass along the good wishes to my husband. This morning began the initiation process.....aka known as admission process into hospital..i.e. x-rays and ekg. So I guess we are off into the world of BC and treatment.
On another note: Last night I laid in bed thinking about all the forums here that I read yesterday. You all are here helping others. And doing a nice job of it at that. I wondered to myself...How Are All of You physically and mentally doing after all that you have gone through..and in some case still going through? How do you feel today? Have what you gone through changed your lives? Or, changed the people you used to be? Has BC become foremost in your everyday challenges and thoughts?
Thanks Mike.... I printed the letter you had written re "Major Bladder Cancer Hospital is Not an Option." It will remain in our medical notebook as a reminder to not be swayed. Tomorrow, I will be making an appt at Moffit for when Dr. LocHart returns. Tonight my husband reported another bad situation of a lot of bright red blood in his urine today. I think the monster wants out after the uro tampered with it on Friday. Something is not right and I think we need to do the TURBT Thursday. We do heed your warning and thankyou.
Anita----thanks for answering the question about returning to work. I figured two weeks sounded about right. One day at a time. Doug is lucky..sounds like you are a great caregiver.
Doug's last TURB surgery, he had the catheter in for a week and stayed home from work for 2 weeks. Your husband may have to wait and see how he feels. I say don't push it and go back too fast. You are getting good advice from everyone. Take a deep breath. The waiting and the unknown is the worst of it (at least for me). Prayers are with you.