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Afraid and needing advice

9 years 2 months ago #31798 by mmc
Cher,

When the cancer spreads into the prostate, that is called T4.
That's the Stage.

Once the pathology comes back you will have grade, but from the sounds of it, it is most likely high grade.

That does not mean that it is metastatic. There is not enough information to know that yet.

He's going to need some scans to see if it has spread anywhere else (lymph nodes, lungs, etc.).

That's going to determine the next course of action. I'd suggest that you let Moffit know about the pathology report right away so they can be sure to give him a high priority.
Actually, you can already tell them that the tumor went into the prostate.

You want to be on the top of the list when the doctor is back at Moffit.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 2 months ago #31797 by mmc
Cher,

Thanks for the update. Glad your husband is doing well.
Sorry to hear about the spread to the prostate.

My intent was never to say that other hospitals aren't good. There are many great hospitals for post operative care and other things. The main point really is that once bladder cancer is diagnosed to get the follow up at a major center (such as Moffit) with best, most experienced (not in years, but in frequency) surgeon you can get.

Once you get the pathology results back, you will also want to get copies of those slides, as well as all the reports from anything and everything related to the bladder cancer to bring with you to Moffit.

All the best for a speedy recovery.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 2 months ago #31796 by New Diag 7
Dear Warren, Pat, Sara Anne, Mike, Jim, George, Nancy, Cynthia and Anita (Doug's wife),

This is the first opportunity I've had to sit at my computer since my husbands discharge from hospital ysterday afternoon.

First and foremost, I want to thank each and all of you for every post that I have received. A person can go to battle alone and hope to win, but when you have an army behind you...your odds are a lot better. I especially was appreciative after reading Warren's email....it gave me a little more encouragement re our urologist being we were already in the hands of the urologist at this last moment of surgery, not having much time to go elsewhere. However...we will still be seeking another opinion at Moffit Cancer Center the first week in June after Dr. Lockart returns from vacation. For now, we wait on pathology.

As for my husband.....though I was in defensive mode with horns protruding waiting to go into attack mode should we have encountered any half wits at St. Josephs Hospital..we were amazingly shocked at how well the care was. That was an incredible relief! I actually dosed off for 10 minutes at his bedside and let my horns down. :-)

As for the surgical procedure. The urologist said it was the largest tumor he had ever seen and it did invade part of the prostate so they did have to resect part of prostate. He said he thinks he "got it all" BUT........we won't know until the pathology report comes back on Wednesday.

He had CBI (continuous bladder irrigation) for the first 12 hours after surgery and has come home with a foley catheter. The catheter will be removed on Monday. He spiked a temp of 100.7 last night, but it is gone today AFTER I woke the doctor up at 3:00 AM. Oh well sorry Doc!

I am sure this is just the beginning of what is to come....but I am glad this part is over.
I feel like I gave birth to ten kids in the last 48 hours.
I am exhausted...but he appears to be resting comfortably.

I again thank all of you for every word you have typed.

Cher

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9 years 2 months ago #31774 by GKLINE
From the looks of your avitar........... Waaaaaaaaaayyyyy underground!

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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9 years 2 months ago #31772 by Patricia
I'm undercover George!
:laugh:

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9 years 2 months ago #31769 by GKLINE
Pat, I want to see your badge. Is it Orange? :laugh: :laugh: :laugh: :laugh: :laugh: :laugh: :laugh:

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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