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Somewhere between Stage 1 and 2

8 years 8 months ago #31178 by Patricia
Karen..now that i know you're female i shall add to the list from MSK.....Dr. Machele Donat...she's great with women and also great with the Indiana Pouch.
http://www.mskcc.org/prg/prg/bios/335.cfm
Pat

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8 years 8 months ago #31172 by mind4u
Thank you. I will definitely check them out.
Karen

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8 years 8 months ago #31170 by Patricia
Gee Mind4u...you're only about 2 hrs from the top bladder cancer hospital in the country at Memorial Sloan. I live in Ohio and thats where i went for my second opinion and re-turb due to the local not getting enough of a sample and leaving margins to re-seed. They have so many top uro/surgeons in the field......Dr. Harry Herr (probably the most famous..he actually did mine)
http://www.mskcc.org/prg/prg/bios/54.cfm
Dr. Bochner
http://www.mskcc.org/prg/prg/bios/616.cfm
This is a highly specialized field and you want the best.
Pat

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8 years 8 months ago #31166 by mind4u
Thanks. I am supposed to get a copy of the report tomorrow. I am in Albany/Saratoga NY. I'll let you know.
thanks again.

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8 years 8 months ago #31162 by Patricia
No treatment should be determined until the pathology report is in. If you are Stage 2 into the muscle you sure don't want BCG. If the surgeon did not get enough of the detrusor muscle i would say get a second opinion on the pathology and a second TURB by another surgeon. The path report is yours...call the hospital where it was done and ask for it..they must give it to you.
Tell us where you are.
Pat

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8 years 8 months ago #31154 by mind4u
Hi. I was recently newly diagnosed with a 4cm tumor. I just had my first turbt to remove it. My doctor is telling me that he is optimistic for me to be stage 1 but I may be stage 2. He seemed to be saying the muscle is
"sort of" involved? I am going to ask for a copy of the pathology report this week, when I go for BCG, to try and understand. Has anyone ever heard of such inconclusive muscle involvement pathology report?

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