Hey Wendy, thanks for the message. The uro didn't offer much advice other than he thinks I should have a cystoscopy. I know it's possible it could be the stones although he said it's pretty untypical pain I'm experiencing for that. I've had so many tests so far that I guess the logical thing is to just do the best test once and for all. Over the past few months I've had two ultrasounds, two kub's, a ct scan, cytology, dozens of urine tests, blood tests and some very uncomfortable physical tests that I don't care to mention. I'm getting sick of all these tests!! After the cystoscopy is done that's it for me. Did anyone on this forum get severe constant bladder pain? thanks
Hootie, have you looked at the site Rosemary referenced? I think it's way more likely you have one of the many different bladder conditions that can cause chronic pain. I don't think it's bladder cancer, but I do think you have a serious condition that needs some kind of treatment, if possible.
What does the uro say now about the state of things?
The name Painful Bladder Syndrome was introduced in 2002 by the International Continence Society (ICS) which defines it as “suprapubic pain related to bladder filling, accompanied by other symptoms such as increased daytime and night-time frequency in the absence of infection or other pathology”. The ICS reserves the term Interstitial Cystitis for “PBS with “typical cystoscopic and histological features”.
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006