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Newly diagnosed november and now have 2 more tumor

9 years 10 months ago #30551 by BB317
thank you all for your help. You have made me feel better. My doctor is just a urologist. I like him , he is a good doctor but I will feel better getting a second opinion. Thank you all for your help and support. I will update as i know more. Also i know more questions to ask thanks to your replys. I guess I am really nervous about it because I lost a sister-in-law to it 3 years ago. She was 52 at the time.

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9 years 10 months ago #30542 by Moonerj
I to was dx with TA low grade. Had two recurrences during 1st year even though on BCG treatments.
I continued with the BCG treatments, had 1 instillation of mitomycin C after my 3rd Turbt, finished maintenance treatments and have been cancer free now over 27 months.
My cancer did not progress with the recurrences.
Non-invasive low grade bladder cancer has a high recurrence rate.
Ask your Uro if he intends to instill mitomycin C after your upcoming Turbt.
I would also recommend getting a 2nd opinion, as I did.
If anything it can assure you to have confidence in your current medical team and pathology reports. The top cancer and teaching hospitals deal with bladder cancer on a daily basis.
Also their Pathologist see bladder cancer tumors daily.
I wish you all the best.

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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9 years 10 months ago #30538 by mmc
As Warren mentioned, the key is getting to major bladder cancer center with urologists that have extensive experience dealing with bladder cancer. They typically have multidisciplanary teams who evaluate your situation. These hospitals are typically teaching hospitals but not all are created equal.

Where are you located?

Did you have a severe reaction to the BCG? Typically, if BCG is given it is given once a week for 6 weeks and then followed up with maintenance doses (3 weeks every 3 months, then spread out over time).

Low grade is certainly the best to have if you have to have bladder cancer. Sometimes it is just treated with removal and then watchful waiting. Since you had more tumors within three months, it will probably warrant some additional treatment but a top urologist and a top bladder cancer center is really the one to make that assessment with you.


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 10 months ago #30536 by wsilberstein
They can come back quickly which is why cystoscopies are done so frequently at first. Most do not progress in grade. Speed of recurrence does not imply progression.
Superficial (non-invasive) bladder cancer is generally handled by urologists without the involvement of an oncologist, BUT the urologist must be one who has tons of experince with bladder cancer. If you're not at a center with a reputation for dealing with bladder cancer, you need a second opinion from someone with the expertise in the field. That is the mantra of this group. :)

TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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9 years 10 months ago #30534 by BB317
I had one tumor removed nov 2009 went for 3 month checkup and have 2 more tumors, seperate locations in the bladder,
The first tumor was tcc low grade, noninvasive. Recieved one round of BCG after removal of tumor. The two new tumors are one centimeter each and I am scheduled for removal and biopsy on march 9th. My urologist has yet to refer me to an oncologist and this concerns me.
I went to my internal medicine doctor yesterday 2/26 and he has referred me to a oncologist. My question is since these tumors came back so quickly would they be high grade.
I want to do all the right things and am confused on the direction i should take.
thank you for you help.

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