And to think i was saying Hooray last week!

14 years 2 months ago #30236 by sara.anne
Replied by sara.anne on topic And to think i was saying Hooray last week!
Pat, I agree 100% with Nancy's advice. GET A SECOND OPINION.
Why does she want more lymph nodes now? Did they do a sentinal node biopsy at the surgery?
Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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14 years 2 months ago #30234 by Webs
Pat,
Beaches are great but second opinions are better! If your not happy with the her assessment of the situation keep looking. It is your body, your life, and your choice. If the 2nd opinion agrees with her you will feel much better with the treatment plan.

Pretty sure that is what you would tell me. B)

Char

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14 years 2 months ago #30233 by cljjlk
Replied by cljjlk on topic And to think i was saying Hooray last week!
Pat,
I’m sorry to hear about your disappointment. Hey, come on down here to South Florida. It’s not toasty today or for the weekend, but they are predicting sunny and warmer weather by next week once the front moves through. The change in scenery will do you good. Hopefully all the good wishes and support here at this forum will be a return for all that you have given to us. It’s hard, but keep the spirits up and that positive attitude, we all know that is best. Thanks for keeping us up to date. You are in my prayers.
Chuck :)

dx - Aug 2005
Five reoccurences (last 12/09 Ta high grade)
BCG Started 10/09 (2 6wk treatment)
BCG Maintenance started 4/10

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14 years 2 months ago #30227 by Nix
I understand the frustration, but I think the advise our Patricia would give is: If you are questioning anything the doctors are saying, by all means get a second opinion. Perhaps you would be able to send all your records to a specialist in Breast Cancer, have a review and then proceed. I don't know what time table you are on, but I know when I had my slides sent to John Hopkins, they were very prompt.
I don't know much about breast cancer, but thought I would write and let you know I am thinking of you.
Hey,you might as well get this over with, it is cold at the beaches. Buy the time you are done, the beach will be toasty warm :)

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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14 years 2 months ago #30219 by Patricia
had to postpone my radiologist/oncologist meeting last week due to a foot of snow and terrible roads but i did get there today and she pretty much shot down all the research i had done. Doesn't want to do the Canadian protocol..but do 4 weeks with a spiffy machine IGRT or Tomography where they do a quick CT scan each time before radiation to adjust to whatever..who knows..my tumor is out. Its the Axilla that needs the radiation. I'd researched the prone position as that does less harm to lung or heart tissue but..yep shot down again...that one is reserved for 36 DD's...i didn't make the cut with that one. She wanted me to go back in and have a second operation to remove more nodes....well heck..thats a crap shoot..they're embedded in fat and they don't know if they have them all anyway so why bother and then to couple radiation on top of it is just asking for lymphedema..so Pat is not taking that route. I don't know......think i'm going to get another opinion from some other radiologists who specialize in breast cancer. Problem is she's it here in Cinti and she also does pediatric cancers. She's probably good. How would you know. Bladder cancer so much easier to research as there aren't that many places or top uro/surgeons out there. I'm supposed to go in next week to get marked but hey i might just be on a beach somewhere. The fight has been drained out of me!
Pat

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