Forum

× Welcome click the New Topic button to post

Father Newly Diagnosed

8 years 10 months ago #30025 by mmc
One piece of information that may help you convince him....

Explain how this is all very new to him, but not to us. We've been through it. Pat's been researching for 8-9 years. I've been researching for a few years. Others here have been researching for much longer than I have.

The research has shown (not just ours, but the research of doctors over the years) that the biggest predictor of the most positive outcomes is being treated at a top bladder cancer hospital with top doctors. Experience matters and that's what they deal with every single day, many times a day. The multidiscipline teams they have make a difference. The puliminologist (as Will and Pat mentioned) is the one to make the call in conjunction with the rest of the team about his candicacy for surgery.

Oncologists do not have the same experience in dealing with bladder cancer.

Good luck in your discussion with your father!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

8 years 10 months ago #30022 by mmlaphillips2
Pat, I looked up the info and hopefully will be able to talk him into it. That will be a battle in itself. Wish me luck. Thank you so much.
Catscan this week hopefully it shows nothing.

Please Log in or Create an account to join the conversation.

8 years 10 months ago #29993 by Patricia
Did you see the oncologist at USC/Norris? They have a multi diciplinary team there including pulmonologists. Ask for a consult there. Did you see Gill? or Skinner?...Ask for Gill and tell him Pat his infamous Indiana pouch from Cinti sent you!!
pat

Please Log in or Create an account to join the conversation.

8 years 10 months ago #29982 by mmc
For men it is the bladder and prostate that are removed.
If the surgeon finds cancer in the urethra, that is removed as well. There will also be a number of lymph nodes removed.

If they know that cancer has spread to a kidney, that's one thing but they don't remove a kidney unless the cancer has spread there.

It's really important to get him to USC and get to the doctor that Pat recommends. The skill of the surgeon is critical.


Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

8 years 10 months ago #29980 by mmlaphillips2
When the surgery is done, is it usually only the bladder removed.

Not sure if it makes difference but was told if he Could have surgery it would be bladder, uretea, and kidney.

Please Log in or Create an account to join the conversation.

8 years 10 months ago #29979 by mmlaphillips2
Thank you everyone.
Yes, it was USC that the urologist said it would need to be done prior to oncologist saying it could not be done.

Now I need to try to talk him into getting another opinion.

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add attachements.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 1 User and 334 Guests 
CoraBell's AvatarCoraBell

Legend: Site Administrator Global Moderator Moderator Banned User Guest

Statistics

Total Messages: 50850 Total Sections: 1 Today Open: 0 Today Total Answer: 3
Total Subjects: 6515 Total Categories: 11 Yesterday Open: 1 Yesterday Total Answer: 11
Total Users: 7773 Latest User: WoundNurse
Powered by Kunena Forum