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i cannot sleep because of my cancer came back

9 years 6 months ago #30769 by Nix
When I was dx'd 3 1/2 years ago, I wanted to hear, "well your cancer is gone you are healed forever". As I have continued this journey I know that will never happen with bladder cancer. Having said that, if you follow the protocol and your Uro keeps a close eye on everything, you will be in good hands. (I always got a second opinion with every new step) Some patients it never comes back, others it does. the important thing is that it doesn't progress to another stage.
As for food.........a study a few years back, suggested broccoli (1 1/2 cups a week)was helpful for bladder cancer. I also eat a lot of Vit A fruits and vegetables. As I see it, all the above won't hurt and yet it is good for you whether you have bladder cancer or not. Other than that, just take good care of yourself and follow-up with EVERYTHING!

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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9 years 6 months ago #30763 by gijosephine
i think i a handling my bladder cancer quite well. being on this site had giving me a new outlet and new questions are there any bladder cancer centers in michigan? does bladder cancer go away? what can i eat or not eat to protect my bladder? should i be concern about the air i breathing? i like to hear what others are doing to stay physically well. i excersise and eat no pork or beef drink plenty of water. what else can i do to live well?

this is where i need to be

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9 years 6 months ago #30611 by Humpy
Jo, A second opinion saved my life. Might I recommend
Dr. Hafez at U of M Ann Arbor. He is a wonderful man/surgeon.

appointments: 734-647-8903

Please call, Jim

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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9 years 6 months ago #30610 by mmc
As Webs said, a 2nd opinion is confirmation. You don't just go to any old urologist from the phone book for a 2nd opinion. You go to a major bladder cancer center.

They confirm the diagnosis and the treatment plan. It may be that it agrees with your uro and you continue to go there. It may be they offer some additional insight and advice that you discuss with your uro and agree to that treatment plan.

The treatment plan may very well just be periodic cystos. Usually, it is every three months for a while and then as long as it stays all clear they stretch it to every six months.

If they find something, they remove it and just keep an eye on it. As long as it stays low grade, things should be pretty good.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 6 months ago #30605 by Webs
Josephine,

A second opinion is not a step back and it is not to second guess your choice. It is a conformation that the journey you are on is the right one and brings peace of mind.

Whatever you choose to do know that we are here for you.

Webs

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9 years 6 months ago #30604 by gijosephine
i been thinking about what mike said he said i should get a second opinion. i was diagnose 5 years ago and accepted my fate. i only had one doctor and one diagnose. how can a second opinion help or change things? getting properly cared for is my top priority! thats what i was doing until the words second opinion came up. it happen so fast my i had blood in the stool my doctor sent me a uro logist the very fisrt visit he told me i had superficial bledder cancer a tumor was found and had to be removed. two days later iwas in the hospital having the tumor removed. that was five years plus ago. do i really need another cyto by another urologist? at this point of what i thought is my planned long term treatment. i don't need doubts and regrets at this time i have came to far to look back. i hope to continue my journey and stay the course of my destination.

this is where i need to be

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