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i cannot sleep because of my cancer came back

10 years 3 months ago #29970 by sara.anne
It really helps to "talk" about this. Many people here on the list have been through most everything and can really add perspective! Please let us know the answers to the questions Mike has posed and I know there are people here who can help.
Meanwhile, I will keep good thoughts for you.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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10 years 3 months ago #29950 by mmc
So sorry to hear that you've had a recurrence. Many of us have had them as it is the nature of the beast.

You are NOT ALONE!

Can you give some more background so we have some way to guide you?

What was your bladder cancer diagnosis before? (stage and grade).
What was your treatment before?
What was the result of your pathology report after this biopsy (TURBT) that you just had?
Where are you being seen?
What has your doctor recommended as a treatment plan?

I know it can seem overwhelming again when it comes back but there are certainly things that can be done depending on stage and grade. If we try to take things one step at a time, it can sometimes help as you can be focused on each step.


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 3 months ago #29947 by gijosephine
at first when i was diagnosed in august 2005 i denied the fact that the early stage bladder cancer would come back i did not seeksupport nor did i talk about it. 4 yaers and two months later two days before my 50th birthday i went to have my cytogram 6 month test to find my cancer came back. scared and in shock i told noone and celebrated my bithday with a bang. now three months later after the cancer was removed again! i am back to where it all stared with bladder cancer in its early stage. now i want to talk about it is any body out therenot talking ,dealing and surviving this cancer? pleasetalk to me and help me cope. it did not go away

this is where i need to be

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