As you now know everyone here, either caregiver or patient, will tell you that you have a very curable disease. None of us are always up and happy, no one likes the BCG treatments, the side effects or another cysto. BUT we are walking around breathing dealing with this malady every day. You will also. I encourage you to talk to others about it, read all you can here and at other sources. The more you know, the better you can map out your recovery and future. Take care and keep fighting.
My tumors were noninvasive low grade. I had a couple of recurrences during my 1st year even though I was having BCG treatments. I have now finished my maintenance BCG treatments and have been cancer free for 27 months.
The people here (who I just love) convinced me to get a 2nd opinion at a top cancer hospital. Now I have a top URO/Surgeon who I can go to if my cancer returns and progresses.
I am still under the care of my original Uro as my 2nd opinion Uro agreed with my dx and treatment and assured me I was in good hands. Do I still worry, yes, especially prior to checkups. BUT the 2nd opinion has given me confidence that I have a great medical team behind me if the beast returns.
Listen to the others and to me, get the 2nd opinion, believe me it will help you sleep.
All the best,
TA Grade 1
30 BCG Treatments
Cancer Free since Nov 2007
We all get a little worried (some more then others, and some for longer than others) when we are about to have our cysto check-ups, but there's no waiting for results. If it's indeed just the cysto exam you are getting and not other testing, the urologist will tell you right away as he's looking through the scope--no waiting at all. If he does see something, then there will be further testing, removal of the tumor(s), biopsy, etc., all of which will take longer and mean more waiting. But if it's all clear, that's that until the next check-up.
Best luck and best wishes. Let us know how you make out. We love good news, and we'll be here for you with advice and support. if you have a recurrence.
Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.
I think you are referring to the next cysto?
We all worry before the next cysto, but that is normal and that is our path now. And waiting until the tests come back can be nerve racking. But as Pat said, the best defense is to learn all you can about your disease, then even if the worst happens, you can stand back take a deep breath on be ready to move on.
There are so many good people here to help us whenever we feel overwhelmed
I will keep my fingers and toes crossed for you, good luck
the unknown troubles me i am getting tested tomorrow cannot wait for the results. but do dread taking the test. i guess this is part of my life now and the way i keep living and surviving. i think differently when i am about to be tested, i always hope for no new reaccurence and pray for another negative test. it has to be to soon a tumor was found four months ago it is to soon i pray. my dr tells me right away during testing what he sees please do not let him see nothing tommorow. i will then think of what is next, what will be for me. i do not like the unknown wainting until tommorow.
This cancer thing is a blow to everyone who gets the news. Your reaction is very normal. Most people want to crawl into themselves and hide. This too is normal. Take a couple of days and do just that. Even feel sorry for yourself a little.
But... and this is a BIG but. Then pull yourself up and get going. You caught your cancer at the very beginning stages and you will kick this. Get to a GOOD BLADDER cancer center and GET GOING.
Nothing puts the lights back on like a fight. You will be OK! But you have to fight for it.
Call your sister, she already has taken up the fight. She will go with you and be a strong rock. I know it already.
We ALL went through the dark, and needed someone to lean on. I can guarantee you that if you are open about your cancer to your friends, they will respond with kindness and support.
You need both kinds of support... the kind that sympathizes with your hurt.... and the kind that kicks you in the ass!
This may be just me, but, I found that talking about the whole cancer thing was a great help. At first it was a little scary, but my friends came by just to visit. Sometimes we talked about it, but mostly, we just visited. Strange how good friends become great friends in times of need.
With all of our support
Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.
08/08/08...RC neo bladder
New Man! [/size]